Dr. DS, DR. D, someone please help.
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Anon9
#1 / 9
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 Dr. DS, DR. D, someone please help.
The scary part of what I'm experiencing is that after reading this board for
6-7 months nobody else has complained of similar symptoms. After having an
infection from sex which would go away and then reoccur after antibiotics for
the first few months, I still didn't feel right, but assumed I had to be
infection free it just had to be nerves and would go away. I didn't feel right
{*filter*}ly for a year and felt some discomfort, finally after all this time I
started having discharge- I didn't have unprotected sex ever again, just that
one initial time. I took doxy and floxin and the "infection" went away again,
only to come back 3 months later. Its been a year now and what I'm experiencing
is that my {*filter*} is constantly tight, physically its like its clenched or
solid, but not an {*filter*}- its almost constantly uncomfortable- and when its
very tight theres discharge during a bowl movement. The normal {*filter*} reaction
is gone and its difficult to get an {*filter*}, sex doesn't really feel all that
good, (not that I've even been having sex- I want to wait until I feel better
at this point, and when I ejaculate its very watery. I saw a uro for months and
had different tests done, tried different antibiotics and flomax but no relief.
When I tried bactrim it was gone when I woke up and I was normal for about 5
days, ( the difference is incredible), and then it came back- my uro said that
if it came back when I was on the abx it had to be a placebo, but its not
possible I could not imagine those symptoms, its like a night/day difference.
I've tried prosta q, cutting out caffeine, {*filter*}, no help. If this is just an
inflammation or irritation I would at least feel better sometimes, this isn't
just going to go away- it acts and always has acted like an infection. I think
I've built up a tolerance to these antibiotics. Tests shown calcifications on
both a prostate and testicular sonogram, can this "damage" be causing the
problem, is it irreversible? I feel bad for you guys who are experiencing pain,
but this constant discomfort and {*filter*} dysfunction is miserable, I cant
imagine living like this my whole life, I'm 26. I'm going to a new uro next
month, (the earliest appointment is always two months away), I'm going to
insist on an eps and maybe having my {*filter*} tested because it doesn't look to
good, two tests I haven't had done yet. This is a horrible problem, I'm not the
same person anymore.
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| Thu, 01 Apr 2004 06:03:18 GMT |
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JORDAN DIMITRAKOV, MD, Ph
#2 / 9
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Dr. DS, DR. D, someone please help. Quote:
>The scary part of what I'm experiencing is that after reading this board for
>6-7 months nobody else has complained of similar symptoms. After having an
>infection from sex which would go away and then reoccur after antibiotics for
>the first few months, I still didn't feel right, but assumed I had to be
>infection free it just had to be nerves and would go away. I didn't feel
right
>{*filter*}ly for a year and felt some discomfort, finally after all this time I
>started having discharge- I didn't have unprotected sex ever again, just that
>one initial time. I took doxy and floxin and the "infection" went away again,
>only to come back 3 months later. Its been a year now and what I'm
experiencing
>is that my {*filter*} is constantly tight, physically its like its clenched or
>solid, but not an {*filter*}- its almost constantly uncomfortable- and when its
>very tight theres discharge during a bowl movement.
=====So, IMHO, this somehow lends support to the hypothesis tat you have neurogenic inflammation that some people would classify as pelvic floor dysfunction. The normal {*filter*} reaction
Quote: >is gone and its difficult to get an {*filter*}, sex doesn't really feel all
that
>good, (not that I've even been having sex- I want to wait until I feel better
>at this point, and when I ejaculate its very watery.
=====which, again, results from abnormal nerve function. I saw a uro for months and
Quote: >had different tests done, tried different antibiotics and flomax but no
relief. ====which is the normal course of things when you have neurogenic inflammation. Quote: >When I tried bactrim it was gone when I woke up and I was normal for about 5
>days, ( the difference is incredible), and then it came back- my uro said
that
>if it came back when I was on the abx it had to be a placebo, but its not
>possible I could not imagine those symptoms, its like a night/day difference.
>I've tried prosta q, cutting out caffeine, {*filter*}, no help. If this is just
an
>inflammation or irritation I would at least feel better sometimes,
===not necessarily this isn't
Quote: >just going to go away- it acts and always has acted like an infection.
===which does not mean there's no inflammation. I think
Quote: >I've built up a tolerance to these antibiotics. Tests shown calcifications on
>both a prostate and testicular sonogram, can this "damage" be causing the
>problem,
====it's rather the consequence and probably not the cause of your conditions. is it irreversible?
====I doubt.
I feel bad for you guys who are experiencing pain,
Quote: >but this constant discomfort and {*filter*} dysfunction is miserable, I cant
>imagine living like this my whole life, I'm 26. I'm going to a new uro next
>month, (the earliest appointment is always two months away), I'm going to
>insist on an eps and maybe having my {*filter*} tested because it doesn't look to
>good, two tests I haven't had done yet.
===which will not bring any new insights into what to do next This is a horrible problem, I'm not the
Quote: >same person anymore.
======I understand. I would probably do a test for tryptase and nerve growth factor in your case and get neurophysiologic testing. Best of luck
This communication is intended to provide general information, and in
no way is a substitute for face-to-face medical care. No implication
of a doctor-patient relationship should be assumed by the reader.
Best regards,
Jordan Dimitrakov, MD, PhD
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| Thu, 01 Apr 2004 18:51:06 GMT |
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NiceShyMiamiG
#3 / 9
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Dr. DS, DR. D, someone please help. Quote: >>The scary part of what I'm experiencing is that after reading this board for
>>6-7 months nobody else has complained of similar symptoms. After having an
>>infection from sex which would go away and then reoccur after antibiotics
>for
>>the first few months,
You haven't been reading this board long - I had more or less what you have except mine felt like hot grains of rice where in my {*filter*}-- right where under ultrasound a lot of stones could be seen. My reading or diagnosis of my situation (since my Uro was worthless) is that your body continues to fight against an infection that is no longer there that could be the reason for your discharge -- taste your {*filter*} during the discharge you will see that it tastes alkaline like someone put baking soda or some like substance in it. {*filter*}ically speaking your situation should improve or resolve in under three years, so just get ready to sit it out (ouch) and wait. I would take small amounts of Bactrim and Doxycyline just in case there are some bugs left in there -- but thats just me -- hang it there.
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| Fri, 02 Apr 2004 11:01:55 GMT |
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PBraid
#4 / 9
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Dr. DS, DR. D, someone please help. Quote: >taste your {*filter*} during the discharge
>you will see that it tastes alkaline like someone put baking soda or some
>like
>substance in it.
What??? NSMG, I always knew you were a cum-guzzler, but man, you are a sick, pathetic LOSER! Couldn't you just have a Sprite instead?
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| Fri, 02 Apr 2004 12:40:09 GMT |
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a
#5 / 9
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Dr. DS, DR. D, someone please help. Quote:
> The scary part of what I'm experiencing is that after reading this board for
> 6-7 months nobody else has complained of similar symptoms. After having an
> infection from sex which would go away and then reoccur after antibiotics for
> the first few months, I still didn't feel right, but assumed I had to be
> infection free it just had to be nerves and would go away. I didn't feel right
> {*filter*}ly for a year and felt some discomfort, finally after all this time I
> started having discharge- I didn't have unprotected sex ever again, just that
> one initial time. I took doxy and floxin and the "infection" went away again,
> only to come back 3 months later. Its been a year now and what I'm experiencing
> is that my {*filter*} is constantly tight, physically its like its clenched or
> solid, but not an {*filter*}- its almost constantly uncomfortable- and when its
> very tight theres discharge during a bowl movement. The normal {*filter*} reaction
> is gone and its difficult to get an {*filter*}, sex doesn't really feel all that
> good, (not that I've even been having sex- I want to wait until I feel better
> at this point, and when I ejaculate its very watery. I saw a uro for months and
> had different tests done, tried different antibiotics and flomax but no relief.
> When I tried bactrim it was gone when I woke up and I was normal for about 5
> days, ( the difference is incredible), and then it came back- my uro said that
> if it came back when I was on the abx it had to be a placebo, but its not
> possible I could not imagine those symptoms, its like a night/day difference.
> I've tried prosta q, cutting out caffeine, {*filter*}, no help. If this is just an
> inflammation or irritation I would at least feel better sometimes, this isn't
> just going to go away- it acts and always has acted like an infection. I think
> I've built up a tolerance to these antibiotics. Tests shown calcifications on
> both a prostate and testicular sonogram, can this "damage" be causing the
> problem, is it irreversible? I feel bad for you guys who are experiencing pain,
> but this constant discomfort and {*filter*} dysfunction is miserable, I cant
> imagine living like this my whole life, I'm 26. I'm going to a new uro next
> month, (the earliest appointment is always two months away), I'm going to
> insist on an eps and maybe having my {*filter*} tested because it doesn't look to
> good, two tests I haven't had done yet. This is a horrible problem, I'm not the
> same person anymore.
I can understand my friend try rooibos tea,nivalin (if you can find wherever you are),yohimebe,various types of quercetin give each one a good try out and tribulus (you can find in healthstore). Plus keep infection free. Take care Pepe
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| Fri, 02 Apr 2004 19:15:31 GMT |
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Rhemi
#6 / 9
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Dr. DS, DR. D, someone please help. Quote:
> >taste your {*filter*} during the discharge > >you will see that it tastes alkaline like someone put baking soda or some > >like > >substance in it. > What???
> NSMG, I always knew you were a cum-guzzler, but man, you are a sick, pathetic
> LOSER!
Ha! He said "cum-guzzler"! Now THAT'S creative. Quote: > Couldn't you just have a Sprite instead?
Sure, if it weren't for the sodium benzoate. I thought Sprite would be the one soda I could drink. WRONG! The Miami Protocol Lithmus Test: taste your cum. Brilliant.
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| Fri, 02 Apr 2004 23:05:53 GMT |
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Steve
#7 / 9
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Dr. DS, DR. D, someone please help. Quote:
> I can understand my friend try rooibos tea,nivalin (if you can find it
> wherever you are)...
*Where can we get Nivalin?
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| Sat, 03 Apr 2004 00:20:25 GMT |
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Jos
#8 / 9
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Dr. DS, DR. D, someone please help. Your {*filter*} dysfunction sounds exactly like mine, except i also have other CP symptoms. Here is something to try:
Take a mega dose of saw pawmetto extract (like 5 times what they
recommend on the label), for just a few days. Make sure the
ingredients say the extract is standardized to 85-95% fatty acids.
I'm not a doctor or any kind of expert, but personal experience is
that saw pawmetto will relieve the inflamation, all though it does
nothing for the cause of the inflamation.
This won't answer many questions, but at least you'll know if your
dysfunction is caused by inflamation.
Also, it might help to massage your perineum. It's not a cure either,
but at least some of that tension goes away temporarily.
Another thing to try would be to take tribulus + nettle. The both
raise testosterone levels, but because of the mechanisms at play
combining them together works much better.
I wouldn't take any of those things for an extended period of time, as
you are messing with your hormones. Its more just a test to see what
is out of whack. If your testosterone is low it might be why you
don't feel like the same person.
In inflamation in the prostate could very well lower testosterone
levels.
josh
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| Sun, 04 Apr 2004 03:59:37 GMT |
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a
#9 / 9
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Dr. DS, DR. D, someone please help. Quote:
> > I can understand my friend try rooibos tea,nivalin (if you can find it > > wherever you are)... > *Where can we get Nivalin?
Somebody here was saying that they got it in the US from a website or something. Do a google search in sci.med.prostate.prostatitis only, for Nivalin and I'm sure you can find his E-mail and his story. Take care
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| Mon, 05 Apr 2004 02:40:13 GMT |
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