University of Maryland Prostatitis Survey (REPOST) 
Author Message
 University of Maryland Prostatitis Survey (REPOST)

[
 This survey has already tripled the amount of data available to
 researchers on the condition of prostatitis. Due to the successful
 number of returns a new cutoff date for collecting surveys has
 been set for December 31, 1995. This survey will be reposted in
 this newsgroup every five days until the cut-off date.
]

This message contains a prostatitis survey which is being posted to
appropriate locations on the world-wide Internet and to other
information provider services. A copy of this survey can be
obtained via electronic mail by sending a request to Internet
address:

A future survey is being contemplated and if produced will be
distributed in the same manner as this one.

*******************************************************************
*                   PROSTATITIS SURVEY  (1.0)                     *
*******************************************************************

This is a survey on prostatitis for Richard Alexander, M.D. at the
University of Maryland Medical Center. If you are a prostatitis
sufferer or know someone who is please help us conquer this disease
by filling out and returning this form. This survey will help us to
understand the symptoms patients who have been diagnosed with
prostatitis have to see if any patterns or clustering of symptoms
emerges. The success of this survey will depend upon large numbers
of men responding accurately and only once. The data will be
examined and may be used to help define what this disease is, from
the patients' perspective, at a meeting at the NIH in December,
1995 on prostatitis. Thank you.

*******************************************************************
*                          DIRECTIONS                             *
*******************************************************************

This survey is only for prostatitis. Please do not respond if you
have a diagnosis of prostate cancer or benign prostatic hyperplasia
(BPH).

All data is confidential. If you wish to remain anonymous simply
leave the name fields blank.

Some of the questions concern your personal habits, in particular
relating to {*filter*} activity. We would very much appreciate your
answering these questions frankly but if you are uncomfortable with
these questions then leave them blank. Please answer the other
questions as best as you can even if you choose to leave personal
questions unanswered.

When answering questions use your computer text editor to insert the
answers between the < and > markers. This allows computer
processing of your form. You don't have to worry about keeping or
removing the blanks surrounding your answer. You also don't have to
worry about upper or lower case letters. To illustrate, the
following are all valid responses to questions that require a Y or
N (meaning Yes or No) response:

<  Y   >
<   N>
< y >
<y >
<n>

Some system remailers will insert extra prefix strings (such as >)
in front of each survey line before you can reply. The computer
tallying your responses ignores these. You don't have to remove
them or be concerned about them.

Some questions require careful thought to pick the best applicable
response. Please do your best and if you get fatigued simply take a
break and continue on at a later time.

*******************************************************************
*                     RETURNING THE SURVEY                        *
*******************************************************************

Return the survey to Internet address:


When using your computer connection to submit your results be sure
to use e-mail to send to the above address instead of posting back
to the entire group where you got the survey. DO NOT ASSUME THAT
JUST REPLYING TO THIS MESSAGE WILL WORK. CHECK THAT THE DESTINATION
IS TO THE ABOVE PRIVATE E-MAIL ADDRESS AND THAT E-MAIL IS BEING
USED INSTEAD OF A POSTING REPLY GOING BACK TO THE GROUP.

You can optionally choose to receive an automated confirmation by
entering your electronic mail address at the bottom of the form.
The confirmation will consist of only the following single line:

     Your survey has been received.

If confirmation is not requested you will not receive any
notification or any other responses to your submission.

When sending back the survey return the complete form intact. (You
don't have to delete the leading information at the front.) Do not
rearrange the question ordering.

We ask that you return the survey via e-mail, but if you prefer you
may print it out and send the results via standard postal service
to the following address:

Richard B. Alexander, M.D.
Division of Urology
University of Maryland School of Medicine
22 S. Greene Street
Baltimore, MD 21201

*******************************************************************
*                          SURVEY ITEMS                           *
*******************************************************************

-------------------
- General
-------------------

[1] What is your age in years? (insert numbers between < and > of
next line)
<    >

[2] What is your race? (insert an X in the most appropriate answer)
<    > Caucasian (white)
<    > African descent
<    > Hispanic
<    > Native American
<    > Asian
<    > None of the above

[3] For how many years have you had the symptoms that led to your
diagnosis of prostatitis? (use 0 if less than a year)
<    >

[4] How much work have you missed due to your prostatitis? (insert
an X in front of the single best answer for you)
<    > None or not applicable
<    > A few days a year
<    > A few weeks a year
<    > A few months a year
<    > On permanent disability

---------------------
- Symptoms
---------------------

[5] Did your prostatitis come on suddenly or gradually? (put an X
in the most appropriate response)
<    > Gradually
<    > Suddenly
<    > Neither or not applicable

[6] Are your symptoms: (insert an X in the most appropriate answer)
<    > Present constantly
<    > Present at a low level all the time but get worse at times
<    > Come and go -- in between flare-ups I am normal
<    > None of the above

[7] Do your prostatitis symptoms vary during the day? (put an X
before one or all that apply)
<    > Lesser in the morning
<    > Greater in the morning
<    > Lesser during midday
<    > Greater during midday
<    > Lesser in the evening
<    > Greater in the evening
<    > Not applicable to me

[8] Please indicate all of your symptoms from the following list.
(put an X in front of all categories you experience leaving the
rest blank)
<    > Fatigue (tiredness)
<    > Myalgia (aches ands pains in muscles)
<    > Arthralgia (aches and pains in joints)
<    > Frequent need to urinate
<    > Difficulty getting urine out such as weak stream, straining,
       or it takes a long time to empty the urine out of your bladder
<    > Pain that occurs with urination or is made worse by urination
<    > Pain (other than with urination) that is somewhere in the
       pelvic area ({*filter*}, groin, testicle,{*filter*}, {*filter*} or
       thereabouts)
<    > Pain deep in the abdomen (belly)
<    > Pain in the lower back
<    > Pain in a location not in this list
<    > Other symptoms not on this list
<    > No symptoms or not applicable

[9] Please rank order your symptoms from most severe to least
severe. Start with 1 for the most severe, then 2 for the next and
so on until no more symptoms match your condition. Leave unmarked
any symptoms you don't experience. If none of the symptoms apply
then place a 1 in either of the last two categories.
<    > Fatigue (tiredness)
<    > Myalgia (aches ands pains in muscles)
<    > Arthralgia (aches and pains in joints)
<    > Frequent need to urinate
<    > Difficulty getting urine out such as weak stream, straining,
       or it takes a long time to empty the urine out of your bladder
<    > Pain that occurs with urination or is made worse by urination
<    > Pain (other than with urination) that is somewhere in the
       pelvic area ({*filter*}, groin, testicle,{*filter*}, {*filter*} or
       thereabouts)
<    > Pain deep in the abdomen (belly)
<    > Pain in the lower back
<    > Pain in a location not in this list
<    > Other symptoms not on this list
<    > No symptoms or not applicable

[10] Indicate in percent the amount of time you experience the
following pain levels (change the numbers, total should be 100%)
<  0%  > None
<  0%  > Mild
<  0%  > Moderate
<  0%  > Severe
<  0%  > Disabling

[11] If you have pain, where is the pain located (place an X in all
those categories which describe your pain location)
<    > Perineum (area between {*filter*} [{*filter*}] and{*filter*} [bowel
       opening])
<    > {*filter*}
<    > Left testicle
<    > Right testicle
<    > Left groin
<    > Right groin
<    > Base of {*filter*}
<    > Higher up in middle of {*filter*}
<    >{*filter*}
<    > Around {*filter*}area but deeper inside
<    > Deep in abdomen
<    > Tip of {*filter*}
<    > Lower back
<    > My pain location is not in this list
<    > I don't have pain

----------
Ten of the next eleven questions are to be answered with a special 0
to 5 number indicating one of the following responses:

0 - Not at all
1 - Less than 1 time in 5
2 - Less than half the time
3 - About half the time
4 - More than half the time
5 - Almost always

You may find it easier to write this scale down for reference while
responding to these questions.
----------

[12] Over the past month or so, how often have you had a sensation
of not emptying your bladder completely after you finished
urinating? (use the special 0 to 5 response)
<    >

[13] Over the past month or so, how often have you had to urinate
again less than 2 hours after you finished urinating? (use the
special 0 to 5 response)
<    >

[14] Over the past month or so, how often have you found you stopped
and started again several times when you urinated? (use the special
0 to 5 response)
<    >

[15] Over the past month or so, how often have ...

read more »



Fri, 29 May 1998 03:00:00 GMT
 University of Maryland Prostatitis Survey (REPOST)

[
 This survey has already tripled the amount of data available to
 researchers on the condition of prostatitis. Due to the successful
 number of returns a new cutoff date for collecting surveys has
 been set for December 31, 1995. This survey will be reposted in
 this newsgroup every five days until the cut-off date.
]

This message contains a prostatitis survey which is being posted to
appropriate locations on the world-wide Internet and to other
information provider services. A copy of this survey can be
obtained via electronic mail by sending a request to Internet
address:

A future survey is being contemplated and if produced will be
distributed in the same manner as this one.

*******************************************************************
*                   PROSTATITIS SURVEY  (1.0)                     *
*******************************************************************

This is a survey on prostatitis for Richard Alexander, M.D. at the
University of Maryland Medical Center. If you are a prostatitis
sufferer or know someone who is please help us conquer this disease
by filling out and returning this form. This survey will help us to
understand the symptoms patients who have been diagnosed with
prostatitis have to see if any patterns or clustering of symptoms
emerges. The success of this survey will depend upon large numbers
of men responding accurately and only once. The data will be
examined and may be used to help define what this disease is, from
the patients' perspective, at a meeting at the NIH in December,
1995 on prostatitis. Thank you.

*******************************************************************
*                          DIRECTIONS                             *
*******************************************************************

This survey is only for prostatitis. Please do not respond if you
have a diagnosis of prostate cancer or benign prostatic hyperplasia
(BPH).

All data is confidential. If you wish to remain anonymous simply
leave the name fields blank.

Some of the questions concern your personal habits, in particular
relating to {*filter*} activity. We would very much appreciate your
answering these questions frankly but if you are uncomfortable with
these questions then leave them blank. Please answer the other
questions as best as you can even if you choose to leave personal
questions unanswered.

When answering questions use your computer text editor to insert the
answers between the < and > markers. This allows computer
processing of your form. You don't have to worry about keeping or
removing the blanks surrounding your answer. You also don't have to
worry about upper or lower case letters. To illustrate, the
following are all valid responses to questions that require a Y or
N (meaning Yes or No) response:

<  Y   >
<   N>
< y >
<y >
<n>

Some system remailers will insert extra prefix strings (such as >)
in front of each survey line before you can reply. The computer
tallying your responses ignores these. You don't have to remove
them or be concerned about them.

Some questions require careful thought to pick the best applicable
response. Please do your best and if you get fatigued simply take a
break and continue on at a later time.

*******************************************************************
*                     RETURNING THE SURVEY                        *
*******************************************************************

Return the survey to Internet address:


When using your computer connection to submit your results be sure
to use e-mail to send to the above address instead of posting back
to the entire group where you got the survey. DO NOT ASSUME THAT
JUST REPLYING TO THIS MESSAGE WILL WORK. CHECK THAT THE DESTINATION
IS TO THE ABOVE PRIVATE E-MAIL ADDRESS AND THAT E-MAIL IS BEING
USED INSTEAD OF A POSTING REPLY GOING BACK TO THE GROUP.

You can optionally choose to receive an automated confirmation by
entering your electronic mail address at the bottom of the form.
The confirmation will consist of only the following single line:

     Your survey has been received.

If confirmation is not requested you will not receive any
notification or any other responses to your submission.

When sending back the survey return the complete form intact. (You
don't have to delete the leading information at the front.) Do not
rearrange the question ordering.

We ask that you return the survey via e-mail, but if you prefer you
may print it out and send the results via standard postal service
to the following address:

Richard B. Alexander, M.D.
Division of Urology
University of Maryland School of Medicine
22 S. Greene Street
Baltimore, MD 21201

*******************************************************************
*                          SURVEY ITEMS                           *
*******************************************************************

-------------------
- General
-------------------

[1] What is your age in years? (insert numbers between < and > of
next line)
<    >

[2] What is your race? (insert an X in the most appropriate answer)
<    > Caucasian (white)
<    > African descent
<    > Hispanic
<    > Native American
<    > Asian
<    > None of the above

[3] For how many years have you had the symptoms that led to your
diagnosis of prostatitis? (use 0 if less than a year)
<    >

[4] How much work have you missed due to your prostatitis? (insert
an X in front of the single best answer for you)
<    > None or not applicable
<    > A few days a year
<    > A few weeks a year
<    > A few months a year
<    > On permanent disability

---------------------
- Symptoms
---------------------

[5] Did your prostatitis come on suddenly or gradually? (put an X
in the most appropriate response)
<    > Gradually
<    > Suddenly
<    > Neither or not applicable

[6] Are your symptoms: (insert an X in the most appropriate answer)
<    > Present constantly
<    > Present at a low level all the time but get worse at times
<    > Come and go -- in between flare-ups I am normal
<    > None of the above

[7] Do your prostatitis symptoms vary during the day? (put an X
before one or all that apply)
<    > Lesser in the morning
<    > Greater in the morning
<    > Lesser during midday
<    > Greater during midday
<    > Lesser in the evening
<    > Greater in the evening
<    > Not applicable to me

[8] Please indicate all of your symptoms from the following list.
(put an X in front of all categories you experience leaving the
rest blank)
<    > Fatigue (tiredness)
<    > Myalgia (aches ands pains in muscles)
<    > Arthralgia (aches and pains in joints)
<    > Frequent need to urinate
<    > Difficulty getting urine out such as weak stream, straining,
       or it takes a long time to empty the urine out of your bladder
<    > Pain that occurs with urination or is made worse by urination
<    > Pain (other than with urination) that is somewhere in the
       pelvic area ({*filter*}, groin, testicle,{*filter*}, {*filter*} or
       thereabouts)
<    > Pain deep in the abdomen (belly)
<    > Pain in the lower back
<    > Pain in a location not in this list
<    > Other symptoms not on this list
<    > No symptoms or not applicable

[9] Please rank order your symptoms from most severe to least
severe. Start with 1 for the most severe, then 2 for the next and
so on until no more symptoms match your condition. Leave unmarked
any symptoms you don't experience. If none of the symptoms apply
then place a 1 in either of the last two categories.
<    > Fatigue (tiredness)
<    > Myalgia (aches ands pains in muscles)
<    > Arthralgia (aches and pains in joints)
<    > Frequent need to urinate
<    > Difficulty getting urine out such as weak stream, straining,
       or it takes a long time to empty the urine out of your bladder
<    > Pain that occurs with urination or is made worse by urination
<    > Pain (other than with urination) that is somewhere in the
       pelvic area ({*filter*}, groin, testicle,{*filter*}, {*filter*} or
       thereabouts)
<    > Pain deep in the abdomen (belly)
<    > Pain in the lower back
<    > Pain in a location not in this list
<    > Other symptoms not on this list
<    > No symptoms or not applicable

[10] Indicate in percent the amount of time you experience the
following pain levels (change the numbers, total should be 100%)
<  0%  > None
<  0%  > Mild
<  0%  > Moderate
<  0%  > Severe
<  0%  > Disabling

[11] If you have pain, where is the pain located (place an X in all
those categories which describe your pain location)
<    > Perineum (area between {*filter*} [{*filter*}] and{*filter*} [bowel
       opening])
<    > {*filter*}
<    > Left testicle
<    > Right testicle
<    > Left groin
<    > Right groin
<    > Base of {*filter*}
<    > Higher up in middle of {*filter*}
<    >{*filter*}
<    > Around {*filter*}area but deeper inside
<    > Deep in abdomen
<    > Tip of {*filter*}
<    > Lower back
<    > My pain location is not in this list
<    > I don't have pain

----------
Ten of the next eleven questions are to be answered with a special 0
to 5 number indicating one of the following responses:

0 - Not at all
1 - Less than 1 time in 5
2 - Less than half the time
3 - About half the time
4 - More than half the time
5 - Almost always

You may find it easier to write this scale down for reference while
responding to these questions.
----------

[12] Over the past month or so, how often have you had a sensation
of not emptying your bladder completely after you finished
urinating? (use the special 0 to 5 response)
<    >

[13] Over the past month or so, how often have you had to urinate
again less than 2 hours after you finished urinating? (use the
special 0 to 5 response)
<    >

[14] Over the past month or so, how often have you found you stopped
and started again several times when you urinated? (use the special
0 to 5 response)
<    >

[15] Over the past month or so, how often have ...

read more »



Thu, 04 Jun 1998 03:00:00 GMT
 
 [ 2 post ] 

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