Gluten intolerance? 
Author Message
 Gluten intolerance?

I've done quite a bit of searching the archives on the Net and have
asked doctors and friends questions but have yet to be convinced one way
or the other by someone's opinion of what may be causing my problem. If
someone can help with a post, URL link, diet supplements, diet change,
whatever, I'd be very happy to hear from U.

Until my mid 30's I was able to eat anything, cast iron stomach as they
say. Then one day I started to get more than my share of gas (it smells
rather bad at times) and soft, wet stools. At first I thought nothing of
it but over time it became a nuisance.

I tried varying my diet to no avail. I previously to the problem ate
anything including junk foods but had changed to complex carbs like
pasta, protein from eggs, meats and fish, ate more veggies and put away
the candy and soda. It seems the diet change did more damage than good.
I simply lived with the problem continued to eat well and eventually
found Loperamide controlled the problem most of the time, if I really
needed help.

Last year I started to research the problem on my own on the Net. I also
went to my physician for advice. He took stool samples, no bacteria
problems. {*filter*} work gave no indicators of problems. My diet was then
put under the microscope.

I did eat lots of carbs. It was suggested I cut back or better still,
eliminate wheat gluten and see what happened. To no ones surprise the
problem almost vanished, firm dryer stools, almost no flatulence, and
almost nothing left to eat since I lived on bread some days. I started a
diet of corn chips, rice cakes and the like.

I did get to a specialist and he said to try Simethicone after meals,
slowly introduce wheat and in small amounts and take a cap of
Simethicone afterwards. This seemed to work for a while but there are
days when I have way to much gas still, the wet stools have returned as
I ate more wheat products but it seems they affect me more now than when
I ate them in abundance before, it seems I'm more sensitive now. It
seems certain wheat products are worse for me than others.

No other side affects, no pain, no stomach bloating, no intestinal
discomfort (except gas) no {*filter*} in the stools and I've found milk,
beans and veggies like broccoli do not give me gas, it seems only gluten
does. No one in my family has had this problem btw.

Simethicone seems to help limit the problem and Loperamide works rather
well. During the summer when I spend tons of time outdoors at the beach
and do not consume enough water and become a bit dehydrated, the problem
goes away as if water is a key factor even though I'd eat lots of wheat
products.

Is it more of an intolerance than allergy since I have none of the
classic allergy symptoms associated w/allergies?

It appeared later in life out of the blue, is this normal?

Is it more of a digestive problem rather than intolerance? That is, can
I supplement my diet with enzymes or other bacteria like Lactobacillus
to aid in digestion and where do you folks feel the problems originates,
in my stomach or intestinal tract?

Food fermentation is one thought I have concerning what causes the
problem. If it was just diarrhea I might suspect intolerance but the
abundance of flatulence points to something fermenting, not being
digested as if passes from the stomach to the intestinal tract. Anyone
agree?

Could the gut bacteria be out of whack? Not normal levels for me (I know
everyone is different).

Low levels of digestive enzymes? Something seems to be not digesting as
the smell of the gas suggests, bacteria are having a field day.

Recently I found out a friend was suffering similar problems (developed
it over night it seems, she's in her 40's). Her doctor had her take
FiberCon which to both of us seemed like the worse thing to do
considering the problem, it worked for her though, why? Is the fiber
attracting more water and aiding in digestion since this may (?) allow
the cooking.net">food to move through her system faster? I would think I have too
much water in my diet, I drink 12 glasses a day, no caffeine, very
little sugar.

Lots of questions, no answers. If you need more info please ask. I think
I'm getting closer to solving the problem since it "looks" like gluten
is at least partly the culprit here. I haven't tried fiber supplements
yet but I've never had a problem with constipation before and certainly
not after the onset of this condition, help!



Tue, 24 Aug 2004 12:15:36 GMT
 Gluten intolerance?

First man I met on the net almost ten years ago was diagnosed with celiac
disease .. gluten intolerance.
When treated for this he was found to have an underlying problem .. iron
excess.
When treated .. iron deprivation and phlebotomy to lower iron stores ..
problem cleared right up.

Who loves ya.
Tom

Quote:
> I've done quite a bit of searching the archives on the Net and have
> asked doctors and friends questions but have yet to be convinced one way
> or the other by someone's opinion of what may be causing my problem. If
> someone can help with a post, URL link, diet supplements, diet change,
> whatever, I'd be very happy to hear from U.
> Until my mid 30's I was able to eat anything, cast iron stomach as they
> say. Then one day I started to get more than my share of gas (it smells
> rather bad at times) and soft, wet stools. At first I thought nothing of
> it but over time it became a nuisance.
> I tried varying my diet to no avail. I previously to the problem ate
> anything including junk foods but had changed to complex carbs like
> pasta, protein from eggs, meats and fish, ate more veggies and put away
> the candy and soda. It seems the diet change did more damage than good.
> I simply lived with the problem continued to eat well and eventually
> found Loperamide controlled the problem most of the time, if I really
> needed help.
> Last year I started to research the problem on my own on the Net. I also
> went to my physician for advice. He took stool samples, no bacteria
> problems. {*filter*} work gave no indicators of problems. My diet was then
> put under the microscope.
> I did eat lots of carbs. It was suggested I cut back or better still,
> eliminate wheat gluten and see what happened. To no ones surprise the
> problem almost vanished, firm dryer stools, almost no flatulence, and
> almost nothing left to eat since I lived on bread some days. I started a
> diet of corn chips, rice cakes and the like.
> I did get to a specialist and he said to try Simethicone after meals,
> slowly introduce wheat and in small amounts and take a cap of
> Simethicone afterwards. This seemed to work for a while but there are
> days when I have way to much gas still, the wet stools have returned as
> I ate more wheat products but it seems they affect me more now than when
> I ate them in abundance before, it seems I'm more sensitive now. It
> seems certain wheat products are worse for me than others.
> No other side affects, no pain, no stomach bloating, no intestinal
> discomfort (except gas) no {*filter*} in the stools and I've found milk,
> beans and veggies like broccoli do not give me gas, it seems only gluten
> does. No one in my family has had this problem btw.
> Simethicone seems to help limit the problem and Loperamide works rather
> well. During the summer when I spend tons of time outdoors at the beach
> and do not consume enough water and become a bit dehydrated, the problem
> goes away as if water is a key factor even though I'd eat lots of wheat
> products.
> Is it more of an intolerance than allergy since I have none of the
> classic allergy symptoms associated w/allergies?
> It appeared later in life out of the blue, is this normal?
> Is it more of a digestive problem rather than intolerance? That is, can
> I supplement my diet with enzymes or other bacteria like Lactobacillus
> to aid in digestion and where do you folks feel the problems originates,
> in my stomach or intestinal tract?
> cooking.net">food fermentation is one thought I have concerning what causes the
> problem. If it was just diarrhea I might suspect intolerance but the
> abundance of flatulence points to something fermenting, not being
> digested as if passes from the stomach to the intestinal tract. Anyone
> agree?
> Could the gut bacteria be out of whack? Not normal levels for me (I know
> everyone is different).
> Low levels of digestive enzymes? Something seems to be not digesting as
> the smell of the gas suggests, bacteria are having a field day.
> Recently I found out a friend was suffering similar problems (developed
> it over night it seems, she's in her 40's). Her doctor had her take
> FiberCon which to both of us seemed like the worse thing to do
> considering the problem, it worked for her though, why? Is the fiber
> attracting more water and aiding in digestion since this may (?) allow
> the cooking.net">food to move through her system faster? I would think I have too
> much water in my diet, I drink 12 glasses a day, no caffeine, very
> little sugar.
> Lots of questions, no answers. If you need more info please ask. I think
> I'm getting closer to solving the problem since it "looks" like gluten
> is at least partly the culprit here. I haven't tried fiber supplements
> yet but I've never had a problem with constipation before and certainly
> not after the onset of this condition, help!

--
Jesus was a Vegetarian! http://www.***.com/
Moses was a Mystic! http://www.***.com/


Tue, 24 Aug 2004 12:29:57 GMT
 Gluten intolerance?

Quote:
>celiac disease .. gluten intolerance.
>iron excess. When treated .. iron deprivation and phlebotomy to lower
>iron stores .. problem cleared right up.
>Who loves ya.
>Tom

Just looked at my last {*filter*} workup, if it applies. Serum Iron 106 mg/dl
on a reference scale of 40-155. Looks to be OK. Nothing on the entire
workup is out of range, all w/i specs. Doubt if I have celiac.


Tue, 24 Aug 2004 13:26:51 GMT
 Gluten intolerance?
On Fri, 08 Mar 2002 04:15:36 GMT, Wheat intolerance?

Is it more of a digestive problem rather than intolerance? That is,
can I supplement my diet with enzymes or other bacteria like
Lactobacillus to aid in digestion and where do you folks feel the
problems originates, in my stomach or intestinal tract?

Food fermentation is one thought I have concerning what causes the
problem. If it was just diarrhea I might suspect intolerance but the
abundance of flatulence points to something fermenting, not being
digested as if passes from the stomach to the intestinal tract. Anyone
agree?

Could the gut bacteria be out of whack? Not normal levels for me (I
know everyone is different).

Low levels of digestive enzymes? Something seems to be not digesting
as the smell of the gas suggests, bacteria are having a field day.

_______________________________________________

I have gluten intolerance and soy bean intolerance, plus intolerance
to quite a few other plant foods, kidney, liver, hoo boy.  Long story
and I wish I am as articulate as you have been in your post. Had been
like that all my life, cooking.net">food intolerance,  but wasn't aware of it
because that was the only condition I had ever known.  50 years of
Chronic Fatigue Syndrome before I self discovered the problem.
Aaaaarrrrghhh.

Short answer.  There is no cure for cooking.net">food intolerance and the best
thing to do is just to avoid the cooking.net">food types.  You have already
identified your problem.  That is a great achievement.  Your body is
telling you that it doesn't  like gluten.  Repeat.  No cure. Its not
an essential cooking.net">food and is no great shakes if you don't eat it.  Do not
mask your body's rejection by taking {*filter*} or supplements.

What does it do?  I'll skip the medical aspects because even the
doctors don't know.  

Picture your gut as a sensitive organ that reacts to objectional
stimuli.  If the cooking.net">food is really objectional you throw up.  Its not a
voluntary reaction, your gut just tells you it is poison and wants
nothing to do with it.  The point here is the gut knows what is good
or bad and it doesn't need to nor will it take orders from you.

But what about cooking.net">food every one else eats without trouble and yourself
too?   Well if you eat it often enough your gut  becomes desensitized.
This desensitization is the same as pinching yourself on the same spot
continously.  The initial pain soon disappears but continue doing that
and you develop a sore (think stomach ulcer) on the skin and you still
won't feel too bad until it kills you.  That's why I advise against
taking medications or whatever to suppress your sensitivity to gluten
and other "intolerant" foods.

What does the gut do when it is desensitized to intolerant cooking.net">food and it
detects such food?

Three things. One: It secretes lots of mucus to isloate the cooking.net">food bolus
from the gut lining.  Two: It secretes acid to try to destroy the
"contagion."  One of the functions of stomach acid is to destroy
ingested bacteria present in all food.   Three: Often the gut  just
"freezes" so that it doesn't have to or doesn't want to process the
food.  By "freezing" I mean suppressed peristaltic movement.

Too much mucus gives you that "I am stuffed but I don't feel full?"
feeling probably because the thick mucus isolates the nerve endings
that tell the brain to feel "stomach is full."  It also gives you the
urge to clear your throat and clearing the phlegm with it is a solid
indicator of what I just described.

Excessive acid secretion give you acid stomach, the "burning feeling
and of course eventually ulcers.  Combined with reaction three below
(the freeze) it gives you heartburn aka acid reflux.

Imagine using a stick or pin to irritate a slug/snail.  It either
secretes a lot of mucus or it just "freezes" on  its tracks.  The gut,
like the slug, often "freezes" when irritated.  The stomach doesn't
quite reject the ingested cooking.net">food as poison therefore no puke reflex.  So
the cooking.net">food stays in the stomach longer than normal.  The bacteria that
is present in all cooking.net">food go into bloom.  The result is stomach bloating,
lots of foul gas as you described.  Discomfort if not pain. Plus mucus
or excessive acid you get a pretty strange mix of stomach ailments.  

Imagine the "freeze" along each section of the gut as the cooking.net">food passes
down the alimentary canal.  The partially treated cooking.net">food bolus with
bacteria in bloom stays longer than optimal  in each section, with
each gut section adding it own mucus, its  particular enzymes and
having its own bacterial population compete with the bacteria that
came in the bolus.

And you wonder why the doctor can't figure out what's  ailing you.  I
don't think anyone can.  Skip the explanations.  Just don't eat the
stuff!!

klmok



Tue, 24 Aug 2004 18:11:00 GMT
 Gluten intolerance?

Quote:
> Is it more of an intolerance than allergy since I have none of the
> classic allergy symptoms associated w/allergies?

It is a cooking.net">food allergy.  You are generating antibodies against a protein in
wheat and other plant foods.  Every time gluten comes in, there is an immune
system attack on it that damages the lining of the small intestine.

"Small bowel permeability in diagnosis of celiac disease and monitoring of
compliance of a gluten-free diet (gut permeability in celiac disease)."
Acta Medica 2001;44(3):101-104.

Quote:
> It appeared later in life out of the blue, is this normal?

Mean age at diagnosis is 44.9 years of age.  Incidence is increasing
primarily because more physicians world-wide now know about this
life-threatening cooking.net">food allergy.  Only about 28.4% of diagnosed patients
present with GI problems.  Gastroenterologists only diagnosis about 52.7% of
the cases.  Median duration of symptoms is 4.9 years.

"Changing face of {*filter*} celiac disease:experience of a single university
hospital in south Yorkshire." Postgrad. Med. J. 2002 Jan;78(91):31-33.

The above paper reports the current incidence at 1 per every 200 to 300
people.  After GI problems, the second most common problem that leads to
diagnosis is iron deficiency anemia.  Then comes neurological dysfunction,
fatigue and a family history of celiac disease.  The above paper goes on to
list many other initial complaints that lead to the diagnosis.

It is now recommended that when celiac disease is diagnosed, all immediate
family members be checked.  For {*filter*} relatives, the incidence rises into
the 5 to 15% range (5 to 15 people for every 100 tested).  The antibody
produced against gluten can be measured and this is the confirmation.

"Occurrence of celiac disease in siblings and offspring of patients with
celiac disease." Cas. Lek. Cesk 2001 Nov8;140(22):695-698.

Quote:
> Is it more of a digestive problem rather than intolerance? That is, can
> I supplement my diet with enzymes or other bacteria like Lactobacillus
> to aid in digestion and where do you folks feel the problems originates,
> in my stomach or intestinal tract?

Your doctor should have explained all of this to you.  The only effective
treatment is getting the gluten out of your diet.  After about 5 years on a
gluten free diet, you can start adding it back to see how your immune system
reacts.  Everytime you get an attack, you severely damage the gut lining,
with enough damage, it's often fatal.

Quote:
> cooking.net">food fermentation is one thought I have concerning what causes the
> problem. If it was just diarrhea I might suspect intolerance but the
> abundance of flatulence points to something fermenting, not being
> digested as if passes from the stomach to the intestinal tract. Anyone
> agree?

Again, this should have all been explained to you by your doctor.  With the
immune system attack, digestion is impaired and this makes more undigested
material available for bacterial feeding.
If you eliminate gluten from your diet you give your gut a chance to heal
and your immune system to hopefully "reset".

You should already know what foods have to be avoided (wheat, oats, rye,
barley, triticale).  You have to carefully read cooking.net">food labels to make sure
that gluten is not present.

Since your gut is already damaged other cooking.net">food allergies are much more common
so the list of excluded foods should also include all of the known major
cooking.net">food allergens, especially dairy products.  You have to get the gut into a
situation where it no longer reacts to cooking.net">food coming in.  The reaction to
gluten is so strong that severe damage can occur and lead to bacteria
getting out of the gut and causing massive sepsis.  But not everyone with
antibodies against gluten is going to have this very strong gut reaction.

IBIS covers celiac disease very well.  Here is the list of all foods that
have to be avoided but you still need to read cooking.net">food labels and if you are
still having gut problems, get all of the potential cooking.net">food allergens out of
your diet.

Most bread products, stuffing, gravies, cream sauces, flour, macaroni,
spaghetti, noodles, biscuits, rolls, breads or all kinds, crackers, beer,
postum, malted milk, ovaltine, most commercial salad dressings, pies, cakes,
prepared meat patties, bread crumbs, canned meat dishes, canned soups,
instant soups, cream soups, pretzels, wheat germ, wheat bran, ice cream,
puddings and candies.

It's not much fun to have gluten intolerance.  Gut bacteria are not going to
really help that much but you can try to change the mix so that the effect
is less pronounced when undigested cooking.net">food gets into the lower gut.

IBIS lists a lot of supplements that may help but most are just there to
replace vitamins and minerals that don't get absorbed when the digestive
process is all messed up by immune system attack on what's coming in.

Quercetin can help cut back on this attack.  IBIS also points out that
digestive enzymes have been shown to help but to get the most benefit you
have to use bile salts, human pancreatic enzymes and HCL.

--
Marty B.         "You are what you eat."

http://www.***.com/

The above website is for educational purposes
only.  Material in this website and posted material
represents the opinion of Martin Banschbach,
Ph.D. and does not reflect Oklahoma State
University policy or position on nutrition.

Issues regarding the diagnosis and treatment
of human disease can not be addressed
by material in the above website or by
Martin Banschbach, Ph.D.

Any comments made by Martin
Banschbach, Ph.D. are invalid unless
confirmed by your personal physician.



Tue, 24 Aug 2004 23:56:29 GMT
 Gluten intolerance?
The differential diagnosis of malabsorption is extensive. If one really
wanted to validate the malabsorption one could do a 24 hour or even a 72
hour fecal fat determination.This only tells you that indeed you have
malabsorption. Many nutrients are lost so a deficiency is obtained over
time. Pancreatic deficiency can cause malabsorption as can many other
things. The lab work isn't always diagnostic although specific tests for
antigliadin antibodies and others are being used. A biopsy of the gut can
also help. Do a search for key words Celiac disease, gluten sensitive
enteropathy, non-tropical sprue. I think you misunderstood the bacteria in
gut post earlier. The bacterial flora is determined by the micro
environment. Unless you change that micro environment introducing or seeding
bacteria would not be a long lasting treatment. You need to address the
reason or cause of the imbalance. A structural defect in the gut results in
decreased nutrients absorbed which in turn makes these nutrients more
abundant for bacterial use.

Jorge



Wed, 25 Aug 2004 06:16:36 GMT
 Gluten intolerance?
You say that often times you drink a lot of water. This will cause the
stools to move through faster and therefore come out wetter. Also, it
only affects the cooking.net">food which was further along in the intestine, hence
creating a gap. That's could be where the gas comes from. Bacteria are
growing in that empty area. You say that your friend finds that
fibercon eliminates the problem. That's because, if it's taken
regularly, it prevents those gaps from occuring. The fibercon will
slow down the process, but it will also keep it moving at a steady
pace. Hence, no gaps. This is not to say that your friend has the same
problem as you.

I certainly wouldn't dain to contradict the very excellent advice
you've already received in this thread. I would definitely suggest to
immediately have a test done to find out if you are allergic to
gluten. After that let us know the results. Here's hoping the problem
is simpler and less traumatic than that.

On Fri, 08 Mar 2002 04:15:36 GMT, Wheat intolerance?

Quote:

>I've done quite a bit of searching the archives on the Net and have
>asked doctors and friends questions but have yet to be convinced one way
>or the other by someone's opinion of what may be causing my problem. If
>someone can help with a post, URL link, diet supplements, diet change,
>whatever, I'd be very happy to hear from U.

>Until my mid 30's I was able to eat anything, cast iron stomach as they
>say. Then one day I started to get more than my share of gas (it smells
>rather bad at times) and soft, wet stools. At first I thought nothing of
>it but over time it became a nuisance.

>I tried varying my diet to no avail. I previously to the problem ate
>anything including junk foods but had changed to complex carbs like
>pasta, protein from eggs, meats and fish, ate more veggies and put away
>the candy and soda. It seems the diet change did more damage than good.
>I simply lived with the problem continued to eat well and eventually
>found Loperamide controlled the problem most of the time, if I really
>needed help.

>Last year I started to research the problem on my own on the Net. I also
>went to my physician for advice. He took stool samples, no bacteria
>problems. {*filter*} work gave no indicators of problems. My diet was then
>put under the microscope.

>I did eat lots of carbs. It was suggested I cut back or better still,
>eliminate wheat gluten and see what happened. To no ones surprise the
>problem almost vanished, firm dryer stools, almost no flatulence, and
>almost nothing left to eat since I lived on bread some days. I started a
>diet of corn chips, rice cakes and the like.

>I did get to a specialist and he said to try Simethicone after meals,
>slowly introduce wheat and in small amounts and take a cap of
>Simethicone afterwards. This seemed to work for a while but there are
>days when I have way to much gas still, the wet stools have returned as
>I ate more wheat products but it seems they affect me more now than when
>I ate them in abundance before, it seems I'm more sensitive now. It
>seems certain wheat products are worse for me than others.

>No other side affects, no pain, no stomach bloating, no intestinal
>discomfort (except gas) no {*filter*} in the stools and I've found milk,
>beans and veggies like broccoli do not give me gas, it seems only gluten
>does. No one in my family has had this problem btw.

>Simethicone seems to help limit the problem and Loperamide works rather
>well. During the summer when I spend tons of time outdoors at the beach
>and do not consume enough water and become a bit dehydrated, the problem
>goes away as if water is a key factor even though I'd eat lots of wheat
>products.

>Is it more of an intolerance than allergy since I have none of the
>classic allergy symptoms associated w/allergies?

>It appeared later in life out of the blue, is this normal?

>Is it more of a digestive problem rather than intolerance? That is, can
>I supplement my diet with enzymes or other bacteria like Lactobacillus
>to aid in digestion and where do you folks feel the problems originates,
>in my stomach or intestinal tract?

>Food fermentation is one thought I have concerning what causes the
>problem. If it was just diarrhea I might suspect intolerance but the
>abundance of flatulence points to something fermenting, not being
>digested as if passes from the stomach to the intestinal tract. Anyone
>agree?

>Could the gut bacteria be out of whack? Not normal levels for me (I know
>everyone is different).

>Low levels of digestive enzymes? Something seems to be not digesting as
>the smell of the gas suggests, bacteria are having a field day.

>Recently I found out a friend was suffering similar problems (developed
>it over night it seems, she's in her 40's). Her doctor had her take
>FiberCon which to both of us seemed like the worse thing to do
>considering the problem, it worked for her though, why? Is the fiber
>attracting more water and aiding in digestion since this may (?) allow
>the cooking.net">food to move through her system faster? I would think I have too
>much water in my diet, I drink 12 glasses a day, no caffeine, very
>little sugar.

>Lots of questions, no answers. If you need more info please ask. I think
>I'm getting closer to solving the problem since it "looks" like gluten
>is at least partly the culprit here. I haven't tried fiber supplements
>yet but I've never had a problem with constipation before and certainly
>not after the onset of this condition, help!



Wed, 25 Aug 2004 06:35:24 GMT
 Gluten intolerance?
Thanks to martin and klmok for their very in depth expert advice in
this thread, It's one of the best I've seen.
And a note to Martin - after reading your little tet-a-tet (sp?) with
Mad-John (sp?), I now fondly think of you as Martin Bounceback.

On Fri, 8 Mar 2002 09:56:29 -0600, "Martin Banschbach PhD"

Quote:

>> Is it more of an intolerance than allergy since I have none of the
>> classic allergy symptoms associated w/allergies?

>It is a cooking.net">food allergy.  You are generating antibodies against a protein in
>wheat and other plant foods.  Every time gluten comes in, there is an immune
>system attack on it that damages the lining of the small intestine.

>"Small bowel permeability in diagnosis of celiac disease and monitoring of
>compliance of a gluten-free diet (gut permeability in celiac disease)."
>Acta Medica 2001;44(3):101-104.

>> It appeared later in life out of the blue, is this normal?

>Mean age at diagnosis is 44.9 years of age.  Incidence is increasing
>primarily because more physicians world-wide now know about this
>life-threatening cooking.net">food allergy.  Only about 28.4% of diagnosed patients
>present with GI problems.  Gastroenterologists only diagnosis about 52.7% of
>the cases.  Median duration of symptoms is 4.9 years.

>"Changing face of {*filter*} celiac disease:experience of a single university
>hospital in south Yorkshire." Postgrad. Med. J. 2002 Jan;78(91):31-33.

>The above paper reports the current incidence at 1 per every 200 to 300
>people.  After GI problems, the second most common problem that leads to
>diagnosis is iron deficiency anemia.  Then comes neurological dysfunction,
>fatigue and a family history of celiac disease.  The above paper goes on to
>list many other initial complaints that lead to the diagnosis.

>It is now recommended that when celiac disease is diagnosed, all immediate
>family members be checked.  For {*filter*} relatives, the incidence rises into
>the 5 to 15% range (5 to 15 people for every 100 tested).  The antibody
>produced against gluten can be measured and this is the confirmation.

>"Occurrence of celiac disease in siblings and offspring of patients with
>celiac disease." Cas. Lek. Cesk 2001 Nov8;140(22):695-698.

>> Is it more of a digestive problem rather than intolerance? That is, can
>> I supplement my diet with enzymes or other bacteria like Lactobacillus
>> to aid in digestion and where do you folks feel the problems originates,
>> in my stomach or intestinal tract?

>Your doctor should have explained all of this to you.  The only effective
>treatment is getting the gluten out of your diet.  After about 5 years on a
>gluten free diet, you can start adding it back to see how your immune system
>reacts.  Everytime you get an attack, you severely damage the gut lining,
>with enough damage, it's often fatal.

>> cooking.net">food fermentation is one thought I have concerning what causes the
>> problem. If it was just diarrhea I might suspect intolerance but the
>> abundance of flatulence points to something fermenting, not being
>> digested as if passes from the stomach to the intestinal tract. Anyone
>> agree?

>Again, this should have all been explained to you by your doctor.  With the
>immune system attack, digestion is impaired and this makes more undigested
>material available for bacterial feeding.
>If you eliminate gluten from your diet you give your gut a chance to heal
>and your immune system to hopefully "reset".

>You should already know what foods have to be avoided (wheat, oats, rye,
>barley, triticale).  You have to carefully read cooking.net">food labels to make sure
>that gluten is not present.

>Since your gut is already damaged other cooking.net">food allergies are much more common
>so the list of excluded foods should also include all of the known major
>food allergens, especially dairy products.  You have to get the gut into a
>situation where it no longer reacts to cooking.net">food coming in.  The reaction to
>gluten is so strong that severe damage can occur and lead to bacteria
>getting out of the gut and causing massive sepsis.  But not everyone with
>antibodies against gluten is going to have this very strong gut reaction.

>IBIS covers celiac disease very well.  Here is the list of all foods that
>have to be avoided but you still need to read cooking.net">food labels and if you are
>still having gut problems, get all of the potential cooking.net">food allergens out of
>your diet.

>Most bread products, stuffing, gravies, cream sauces, flour, macaroni,
>spaghetti, noodles, biscuits, rolls, breads or all kinds, crackers, beer,
>postum, malted milk, ovaltine, most commercial salad dressings, pies, cakes,
>prepared meat patties, bread crumbs, canned meat dishes, canned soups,
>instant soups, cream soups, pretzels, wheat germ, wheat bran, ice cream,
>puddings and candies.

>It's not much fun to have gluten intolerance.  Gut bacteria are not going to
>really help that much but you can try to change the mix so that the effect
>is less pronounced when undigested cooking.net">food gets into the lower gut.

>IBIS lists a lot of supplements that may help but most are just there to
>replace vitamins and minerals that don't get absorbed when the digestive
>process is all messed up by immune system attack on what's coming in.

>Quercetin can help cut back on this attack.  IBIS also points out that
>digestive enzymes have been shown to help but to get the most benefit you
>have to use bile salts, human pancreatic enzymes and HCL.



Wed, 25 Aug 2004 08:45:18 GMT
 Gluten intolerance?

Quote:
> "Martin Banschbach PhD" posted:
> The antibody produced against gluten can be measured and this is
> the confirmation.

How, {*filter*} work? My doctor never mentioned it, he strongly felt I do not
have celiac disease but was overloading on gluten products (initially I
was eating pasta morning, noon and night and as a snack when I 1st
changed my diet yrs back) and developed the problem I now have.

Quote:
> Your doctor should have explained all of this to you. The only
> effective treatment is getting the gluten out of your diet.

He agreed but said that would be almost impossible as it pops up in
almost everything we eat, see my last sentence below.

Quote:
> Everytime you get an attack, you severely damage the gut lining,
> with enough damage, it's often fatal.

Not good news but I've had the problem, possibly close to 15 yrs.
Obviously it's not real bad when compared to some other people's
problem.

Quote:
> You have to carefully read cooking.net">food labels to make sure
> that gluten is not present.

Today I found wheat listed as an ingredient on a package of gummy candy.
I've become very aware of reading the ingredient list on everything I
eat but as I said earlier, in our American society finding gluten in
products we eat is as inevitable as death, taxes and corrupt
politicians, can't be avoided.

Quote:
> The reaction to gluten is so strong that severe damage can occur
> and lead to bacteria getting out of the gut and causing massive
> sepsis. But not everyone with antibodies against gluten is going
> to have this very strong gut reaction.

Thankfully I fit into the latter category. Thanks for the reply, lots to
think about. Your post as well as all the others have helped but it
looks like I have muchto research, the Net is loaded with info. But this
living on protein is gonna be a bear. The body does seeme to adapt over
time and can use protein as a source of energy. The other choice is live
on corn chips and rice cakes, yuck.

I spoke to a local bakery and they told me they "use wheat flour" in
their corn bread, I'd have to special request them to make real corn
bread for me and of course that will cost $$$. Life is grand.



Wed, 25 Aug 2004 23:21:31 GMT
 Gluten intolerance?

Quote:
>You should already know what foods have to be avoided (wheat, oats,...

Thanks, FYI: http://www.celiac.com/

"Celiac disease, also known... Oats*** have traditionally been
considered to be toxic to celiacs, but recent scientific studies have
shown otherwise. This research is ongoing however, and it may be too
early to draw solid conclusions."

*** http://www.celiac.com/oats.html "Please be aware that due to the way
in which oats are grown, processed and transported, that
cross-contamination with wheat is a possibility."



Wed, 25 Aug 2004 23:39:28 GMT
 Gluten intolerance?

Quote:
>You say that often times you drink a lot of water. This will cause the
>stools to move through faster and therefore come out wetter. Also, it
>only affects the cooking.net">food which was further along in the intestine, hence
>creating a gap.

Interesting since it seems to be the case on occasion. A bowel is passed
with lots of gas following. The other day it was more of an explosive
"pop" after I dumped :) but that would explain the gap idea you've
mentioned.

Water is necessary in my diet, sinus problems on occasion. With all that
water I now drink I now have no sinus attacks, i.e., muscus remains
fluid and cannot thicken and block passages leading to pain and worse,
infection. Two yrs on the water kick and no major sinus problems, just
an occasional headache which clears up pronto w/Sudafed and more water.



Wed, 25 Aug 2004 23:41:09 GMT
 Gluten intolerance?

Quote:

> > "Martin Banschbach PhD" posted:

> > The antibody produced against gluten can be measured and this is
> > the confirmation.

> How, {*filter*} work? My doctor never mentioned it, he strongly felt I do not
> have celiac disease but was overloading on gluten products (initially I
> was eating pasta morning, noon and night and as a snack when I 1st
> changed my diet yrs back) and developed the problem I now have.

Since only about 26.9% of patients with an allergic reaction to gluten
have gut pathiology, the diagnosis has to come from an allergist.  The
review article I cited pointed out that it's often hard to get a
diagnosis if gut pathology is not present because you can find
antibodies against most cooking.net">food antigens in humans but that by itslef
does not mean that there is a problem.

Many people will have antibodies directed at peanut protein and not
have any symptoms of a cooking.net">food allergy.  For people that react very
strongly to peanut protein, anaphalatic shock can occur.  This kind of
very severe reaction does not appear to occur with gluten allergic
responses.

Celiac disease is damage to the small intestine.  If your doctor is
not a gastroenterolist, you might try getting referred to a
gastroenterologist.

Quote:
> > Your doctor should have explained all of this to you. The only
> > effective treatment is getting the gluten out of your diet.

> He agreed but said that would be almost impossible as it pops up in
> almost everything we eat, see my last sentence below.

He's right about that.  Because the immune response in the gut can be
severe enough to damage it to the point that gut bacteria can no
longer be kept out of the {*filter*}, there is an effort to identify foods
that have gluten just like there is to identify foods that have peanut
protein because the immune response can be life threatening for some
people.  It almost means contacting each cooking.net">food supplier to determine if
they use ingredients that contain gluten.

Quote:
> > Everytime you get an attack, you severely damage the gut lining,
> > with enough damage, it's often fatal.

> Not good news but I've had the problem, possibly close to 15 yrs.
> Obviously it's not real bad when compared to some other people's
> problem.

Even in the people who display GI problems, the immune system attack
is not the same.  Some have very little damage to the gut wall but
digestion is still impaired to give a bacterial bloom.  I wonder how
much of the gut damage is really immune system response and how much
is bacterial damage.

Quote:
> > You have to carefully read cooking.net">food labels to make sure
> > that gluten is not present.
> Today I found wheat listed as an ingredient on a package of gummy candy.
> I've become very aware of reading the ingredient list on everything I
> eat but as I said earlier, in our American society finding gluten in
> products we eat is as inevitable as death, taxes and corrupt
> politicians, can't be avoided.

IBIS did list candy as a cooking.net">food to avoid, I guess because gluten is
often in candy.

Quote:
> > The reaction to gluten is so strong that severe damage can occur
> > and lead to bacteria getting out of the gut and causing massive
> > sepsis. But not everyone with antibodies against gluten is going
> > to have this very strong gut reaction.

> Thankfully I fit into the latter category. Thanks for the reply, lots to
> think about. Your post as well as all the others have helped but it
> looks like I have muchto research, the Net is loaded with info. But this
> living on protein is gonna be a bear. The body does seeme to adapt over
> time and can use protein as a source of energy. The other choice is live
> on corn chips and rice cakes, yuck.

> I spoke to a local bakery and they told me they "use wheat flour" in
> their corn bread, I'd have to special request them to make real corn
> bread for me and of course that will cost $$$. Life is grand.

My understanding is that if you drastically cut back on gluten intake,
your gut will heal.  Some people can handle gluten coming in again
after a period of the immune system not seeing it.  If you are lucky
enough to be in this class, I would not push gluten intake again with
pasta for every meal.


Thu, 26 Aug 2004 03:18:41 GMT
 
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