Is anyone getting adequate abx?
This is the problem!! and the reason why Kathleen mentions "activism" in
an earlier post. Until ALL doctors understand that this is a chronic
illness *treatable* with antibiotics and become *willing* to go to bat for
their patients against the insurance companies, we are all in danger of
losing the abx treatments that restore our lives.
Treating tuberculosis with several different antibiotics over several
months, or even longer, is NOT considered experimental. NOT treating
syphilis in the Tuskegee experiment WAS part of the experiment!
Lyme disease is somewhere in the middle between these two right now. Until
the people in the $t#&re/Klempner/$hapiro, et al. camp can be out-shouted
by truth, and proven to be the idiots they are by good research, we are in
trouble. My LLMD treats some patients who travel more than 1000 miles
because they cannot find a doctor closer to their home. This is not right!
Quote:
> Seven years ago my daughter was finally dx with Lyme disease after
> five years of thinking it was CFS. She was put on 1000 mg daily of
> Zithromax for two years. She improved greatly. The seizures stopped,
> and most of her life came back. She still has problems, but nothing
> like what she did have. The other day her doctor told me that she
> wouldn't be allowed to treat a patient with that dosage for that
> amount of time because the insurance companies consider that an
> experamental treatment. What are people doing now? How do you get
> treated? My daughter also had a two month round of IV abx about three
> ears ago. I'm afraid that if she ever needs it again she won't be
> able to get it.
