Babesia herx and info 
Author Message
 Babesia herx and info

Hello all,

I recently tested positive for Basesia (after an initial negative from a
non-lyme and non-coinfection literate lab) and just started on Mepron
and Zithromax.  This is in conjunction with the Rocephin I've been on
for 12 months with no end in sight... Sigh.

Anyhow, my LLMD says I'm likely to get some herxing and I'm wondering
what people's experiences have been like when treating Babesia.  I'm
wondering how long folks have had to wait for the initial herx, if they
repeated in cycles like my lyme herxes do and how severe they were.  Any
info would be welcome.  Also any info on difficulty in treating Babesia
and recommended treatments.

BTW, I pressed for another Babesia test based on the recommendation of a
number of people here.  So thanks all!

Regards,

Peter



Thu, 26 Feb 2004 09:58:21 GMT
 Babesia herx and info

Quote:

> Hello all,

> I recently tested positive for Basesia (after an initial negative from a
> non-lyme and non-coinfection literate lab) and just started on Mepron
> and Zithromax.  This is in conjunction with the Rocephin I've been on
> for 12 months with no end in sight... Sigh.

> Anyhow, my LLMD says I'm likely to get some herxing and I'm wondering
> what people's experiences have been like when treating Babesia.  

My son has been on mepron and zithromax for over two months for babesia,
and has never had a herx.

He did have a chemical burn in his mouth when he took his cod liver oil
right before taking his mepron, and his dr. says the same can happen
with mineral oil, so be aware.

Quote:
> I'm
> wondering how long folks have had to wait for the initial herx, if they
> repeated in cycles like my lyme herxes do and how severe they were.  Any
> info would be welcome.  Also any info on difficulty in treating Babesia
> and recommended treatments.

> BTW, I pressed for another Babesia test based on the recommendation of a
> number of people here.  So thanks all!

> Regards,

> Peter

--
Tourette Syndrome - Now What?
http://members.home.net/tourettenowwhat


Thu, 26 Feb 2004 11:09:17 GMT
 Babesia herx and info
Hey Peter*)!!!!

   My Herx with Mepron was simply SLEEP sleep and a bit more sleep!!!  3 weeks
worth.
And felt awful.  BUT then I was at the best I had been in the last 3+ years-
which was lovely...*!)*!!  Hope you get there too (didn't last for me, backslid
with the Babs a bit, does
not seem to be a friendly strain) but that you STAY there or get all well for
good*)!!!!!!!!!!!!!!!!!!!!!!!!!

Best wishes,
Sarah



Fri, 27 Feb 2004 08:25:39 GMT
 Babesia herx and info
peter,
I had a pretty rough herx from the mepron. like sarah, I was even more
exhausted than usual and felt an increase in fu symptoms. It does help though.
I reapsed and am staring back on mepron/ zithro this week.
I don't know how common this is, but I get really hyper on mepron at times.
unfortunatley it is not a "good" hyper where i feel like doing things,  it is
like when you are so exhausted you get past tired and fee hyper. maybe that
hasn't ever happened to you, but that is what it feels like. more like a
caffeine jumpy feeing yet  my body is so tired. I don't think it is part of my
herx because it happens on and off all thru treatment.

best of luck, I hope it helps.

kj (kathy)



Sat, 28 Feb 2004 13:22:14 GMT
 Babesia herx and info
Peter,
Which are the best labs and tests for babesia testing?? I have some symptoms
now but have always tested negative on IGM, IGG and PCR tests (I think).  I
have positive western blot tests for lyme.
Been on antibiotics now for 2 1/2 years.
Lisa


Wed, 03 Mar 2004 13:27:51 GMT
 Babesia herx and info
Don't know which labs (plural) are best.  Igenex did mine after getting a false
negative from another lab.

Peter

Quote:

> Peter,
> Which are the best labs and tests for babesia testing?? I have some symptoms
> now but have always tested negative on IGM, IGG and PCR tests (I think).  I
> have positive western blot tests for lyme.
> Been on antibiotics now for 2 1/2 years.
> Lisa



Fri, 05 Mar 2004 06:24:33 GMT
 
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