Lyme Article in Elle Magazine: Please Respond 
Author Message
 Lyme Article in Elle Magazine: Please Respond



Fri, 19 Jun 1992 00:00:00 GMT
 Lyme Article in Elle Magazine: Please Respond
Sorry Sue, the email address from the website is incorrect. I called
the magazine and this is the correct address for letters to the editor:


Sent via Deja.com
http://www.deja.com/



Tue, 10 Jun 2003 01:33:07 GMT
 Lyme Article in Elle Magazine: Please Respond


Fri, 19 Jun 1992 00:00:00 GMT
 Lyme Article in Elle Magazine: Please Respond
Sorry, the email address from the website is incorrect. I called the
magazine and this is the correct address for letters to the editor:


Sent via Deja.com
http://www.deja.com/



Tue, 10 Jun 2003 02:04:46 GMT
 Lyme Article in Elle Magazine: Please Respond
Just my 2 cents I emailed to Elle:

I would just like to say that being one who has Chronic Lyme Disease,
your author [Rachel Combe] hasn't a clue as to the subject she was
writing about. Someone who is writing an article that has two sides to a
story shows how well they know their job when they have both sides told,
which in this case this author has chosen not to do or didn't know how
to do her job correctly in the first place.
If she would like to trade places with me for about a week, I would be
glad to know what good health feels like again!
By the way? Telling people Lyme Disease is easy to cure is tantamount to
telling "THE BIG LIE." I have been sick for "25 YEARS!!!!!! " Is that
long enough for you?

                                Sincerely,
                               Helen Ruland

Empty~Nest~Cape~Cod
Helen~Jim~Mariah



Tue, 10 Jun 2003 02:03:32 GMT
 Lyme Article in Elle Magazine: Please Respond


Fri, 19 Jun 1992 00:00:00 GMT
 Lyme Article in Elle Magazine: Please Respond


Fri, 19 Jun 1992 00:00:00 GMT
 Lyme Article in Elle Magazine: Please Respond


Fri, 19 Jun 1992 00:00:00 GMT
 Lyme Article in Elle Magazine: Please Respond


Fri, 19 Jun 1992 00:00:00 GMT
 Lyme Article in Elle Magazine: Please Respond
My letter to Elle with a slight change:

Your article on infectious diseases by Rachel Combe opens up a rather
large area of legitimate medical dispute: the diagnosis and treatment of
Lyme disease.  One school of thought is that Lyme disease is close to
being 50% UNDER diagnosed!  The CDC (Center for Disease Control) admits
that it is probably 10% UNDER diagnosed.  Your article did nothing to
increase the odds of better diagnosing.

Your article quotes Dr. Shapiro as saying that the EM rash of Lyme
occurs 90% of the time.  Poppycock.  A recent search for incidence of EM
or rash shows that almost every state lists a different incidence rate
in their literature from 35% up to 90%!  The CDC is now opting for
80%.   Most clinicians who treat many Lyme patients, as opposed to
academics who just write articles, actually find that it is only about
50% of patients who have a rash.  Every study has a different number.
One reason for all this dissension is the fact that the rash or EM is
the ONLY hard proof we have of infection, because the serologies
(antibody tests) are not very reliable as a diagnostic aid.  And so....
all studies of Lyme disease ONLY include patients with EM!!! Of course
then the incidence would go up!!  It is also thought that different
strains of bacteria may produce different symptoms.  And our own immune
systems all respond in different ways to the provocation of Borrelia
burgdorferi....a spirochete very similar to that of syphilis.

It took me 4 years to obtain a diagnosis because I did not have a
rash...so the 15 doctors I saw didn't even consider it!   Due to the
erroneous information handed out by Dr. Shapiro and some other academics
I suffered financially, as well as physically for too long.  If I
weren't intelligent and persistent enough to do my own research and seek
out a "clinical" Lyme expert rather than an academic, I would still be
out of work and lying on my recliner suffering every day.  As it is I am
back at work after 2+ years of treatment.   I still relapse when I go
off of antibiotics.

If  Lyme disease is NOT diagnosed and treated early, it can become a
chronic infection.   Not much is known yet about the entire pathophysiology
of this disease nor the microbiology of the spirochete.

Prior to contracting Lyme at age 50 I had never been sick and didn't
even bother with having a physician.  I was not nor have I ever been a
hypochondriac.  And what gives a pediatrician the nerve to start making
psychiatric pronouncements???   In actuality there are very few
hypochondriacs, but there are too many doctors who don't believe their
patients when the symptoms are subjective. Dr. Eugene Shapiro, MD should
be ashamed of himself for perpetuating this nonsense.  And your magazine
should run the other side of the story.

Sincerely,
Lee

Quote:

> Sorry Sue, the email address from the website is incorrect. I called
> the magazine and this is the correct address for letters to the editor:


> Sent via Deja.com
> http://www.deja.com/



Tue, 10 Jun 2003 10:54:12 GMT
 Lyme Article in Elle Magazine: Please Respond


Fri, 19 Jun 1992 00:00:00 GMT
 Lyme Article in Elle Magazine: Please Respond
Yes, this is why I used this thread as a backup for my letter.
I've cut & pasted it back to the *working* email address.

F



Quote:
> Frank or anyone,
> I sent a letter via e-mail and it came back.  Has this happened to anyone
> else?
> Sue



Wed, 11 Jun 2003 05:42:47 GMT
 Lyme Article in Elle Magazine: Please Respond


Fri, 19 Jun 1992 00:00:00 GMT
 Lyme Article in Elle Magazine: Please Respond
Regarding Dr. Eugene Shapiro's comments in your article 'Be Afraid But
Not Very Afraid'  which appeared in the December issue of Elle.
Caption: 'Attack of the Killer Insects'

Dr. Shapiro claims that "...the manifestations of Lyme disease are not
so subtle you would miss it. It's not just fatigue or an achy knee."
No, it's not just fatigue or an achy knee...but it can be very
difficult to diagnose, for many reasons. First, the current {*filter*} tests
are unreliable. Second, in many cases a rash does not appear or goes
unnoticed. Third, Lyme disease is a multi-systemic disease and symptoms
often overlap with other diseases. It's symptoms can manifest as
neurologic, cardiac, rheumatologic, ophthalmologic, psychiatric and
dermatologic. Not many doctors are familiar with the broad spectrum of
symptoms associated with Lyme and this often results in a misdiagnosis.
Some of the common misdiagnoses are Chronic Fatigue Syndrome,
Fibromyalgia, Multiple Sclerosis, Lupus and Psychological disorders.

In fact, Dr. Shapiro misdiagnosed my 10 year old daughter when he
examined her in April. He claimed her symptoms were psychological.  She
had been suffering with debilitating headaches for two months, joint
pain, fatigue, heart palpitations and temper outbursts, not consistent
with her nature. He assured us it was not Lyme disease, nor were her
symptoms caused by anything "organic". He suggested we should pursue
counseling. He told her pediatrician her problems were "behavi{*filter*}and
a manifestation of anxiety".  They believed it, and my daughter was
left to cope with her pain, unable to attend school, unable to play
softball, unable to do anything she had been able to do prior to her
illness, with no relief in sight.
Fortunately, I knew my daughter's problems were not psychological and I
continued to research the possible cause of her symptoms. Everything I
read pointed to Lyme disease. A pediatrician in New Haven,CT who
specializes in Lyme disease was highly recommended to us. We had to
wait a month to get in because of the large number of patients on his
waiting list. By the time we got her there, she had such a severe case
of Lyme induced arthritis, she couldn't get in and out of chairs or up
and down the stairs unassisted. After months of treatment, she is back
in school, pain free and enjoying life again. If someone, who is
supposed to be so knowledgeable about Lyme, can miss the diagnosis, how
can we expect other physicians not to do the same?

As far as "People would rather say, 'I think I have Lyme disease'
than 'I'm getting old and tired.' " It is obvious Dr. Shapiro has never
had Lyme disease. If he did, he would never make such a ridiculous
statement. If not caught early in its course and properly treated, Lyme
disease may develop into a chronic illness that is only temporarily or
partially responsive to antibiotic therapy.

Sincerely,
Paula

Sent via Deja.com
http://www.***.com/



Thu, 12 Jun 2003 08:30:04 GMT
 
 [ 14 post ] 

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