Reversal of Stage IV Lung
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bob.. #1 / 23
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 Reversal of Stage IV Lung
Quote:
> > Since this thread concerns my story, I feel compelled to respond to > the > > person who implied that it was made up. They obviously have not even > > taken the time to check any data before jumping to wrong conclusions. > > Although this is admittedly only one case, it occurred as I told it. > > It transpired similarly to a well run experiment, with a 12 week > period > > of chemo at Cedars-Sinai Comprehensive Cancer Center showing no change > > in my 2.5 cm lung tumor. After this 12 week "control" period, I began > > the alternative program, and 6 weeks later my tumor had shrunk by 50%. > > Within 4 months, there was no detectable disease. I have documented my > > xray and CT scans at http://www.***.com/ > > scanned in copies of the original reports. My story has been > > independantly verified by the respectable CancerOnLine web site. To > > view, follow the first link on my links page at: > > http://www.***.com/ > > I can't speak for those who may have died from quackery or ripoff > > artists, but I am still alive and healthy and the facts strongly > > suggest that the alternatives played an important part in my success. > > I was initially skeptical of alternatives, and that is part of the > > reason I did not use them immediately. Any thinking person would > surely > > keep an open mind and check the facts. I did, and I'm glad of it. > > Sent via Deja.com http://www.***.com/ > > Before you buy. > Bob, I'm delighted to hear of the regression of your tumor. My > goodness - stage IV lung cancer! May you keep well!! > You know, medical researchers, and ESPECIALLY oncologists (cancer docs) > aren't snooty at all about trying ANYTHING that has the slightest > glimmer of hope. These go into what are called Phase I clinical > trials. If you were to look at the stuff that has been entered in > Phase I trials, you'd be amazed at the number of alternative medicines > tried. > What they are good at is giving up on stuff that conclusively can be > shown to NOT WORK. I'd say that oncology is filled with 95% of trials > that just showed no help. <snip> > But keep going and talking about essiac, Bob. I've never heard of any > studies on it in particular, and I sure hope it turns out to be of > benefit - Stage IV lung cancer is a tough one, indeed. > ----- > Good health to you! > Doc Steve > (These are just my personal impressions. > I'm not intending them as professional, expert advice.)
Hi Doc Steve, Thought I'd let you know that the University of Texas Center for Alternative Medicine, http://www.***.com/ , has recently started a method of use study on Floressence, a commercially brewed version of essiac. Although my story is hosted on the essiac-info.org site, I used a combination of 5 different alternative strategies in addition to carboplatin/taxol chemo, and I realize there is no way to know which one or which combination had the desired effect. I have personal knowledge of two remarkable successes with essiac, but high levels of CoQ-10 have been documented to eliminate {*filter*} tumors (Biochem. Biophys. Res. Comm., Mar. 30, 1994) An abstract of the BBRC article can be viewed by scrolling down to message #7 at: http://www.***.com/ Similarly the anti-tumor effects of selenium are documented in a J. AM. Med. Assoc.(JAMA) article at: http://www.***.com/ It is even possible that that the methyl sulfonyl methane(MSM) might have potentiated one of the other factors by increasing cell permeability. The timing in my case strongly suggests the alternatives played an important role, but a delayed reaction of the chemo can not be ruled out. I don't know if this is common. I would have to ask the oncologists if it ever happens in stage IV lung cancer that after 12 weeks of ineffective chemo, the tumors suddenly start shrinking and dissappear as they did in my case. Recent communications from others duplicating my regimen have included a few cases where tumors have continued to shrink on the alternative regimen after chemo has been stopped because it was ineffective. Though anecdotal in nature, these people can be contacted and their stories verified. One of the most recent ones was a public posting on the Mediconsult lung cancer support board on Oct. 7, 1999. The board is at: http://www.***.com/ ~supportgroup It is my opinion that this preceding information is significant enough to justify a study under controlled conditions. It would be simple to take a group of stage IV lung cancer patients on carboplatin/taxol chemo and have them duplicate exactly the nontoxic regimen I used, to see if there are improved outcomes. If positive results are noted, then it would take a much larger study to determine which components are necessary and which are irrelevant, chemo included. Is there anyone out there willing and able to do such a study? Bob Karjala http://www.***.com/ Sent via Deja.com http://www.***.com/ Before you buy.
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Tue, 09 Apr 2002 03:00:00 GMT |
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Scarecr #2 / 23
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 Reversal of Stage IV Lung
Quote: >The timing in my case strongly suggests the alternatives played an >important role, but a delayed reaction of the chemo can not be ruled >out. I don't know if this is common. I would have to ask the oncologists >if it ever happens in stage IV lung cancer that after 12 weeks of >ineffective chemo, the tumors suddenly start shrinking and dissappear as >they did in my case. >Bob Karjala http://essiac-info.org/Bob.html
My own theory is: 1. That people are like snowflakes - - no two are exactly alike. 2. The same holds true for cancerous tumors - - the chemical structure of each tumor is unique - - no two are exactly alike. Some are very similar but none are exactly alike. For that reason, a chemical that works to combat a cancerous tumor in one person may or may not work on a similar cancer in another person. It is a trial and error situation at best and I personally will leave the trial and error choices up to those who study it and practice it as their chosen profession. It is risky to rely on professionals - - it is far, Far, FAR riskier to rely on amateurs such as those on a news group - - Paul B. Dennis being foremost among them. Your cancer tumors may have shrank into oblivion due to a shift in your body chemistry that has NOTHING to do with any cancer treatment. *********** *S*******W* **C*****O** ***A***R*** ****R*C**** *****E***** ***********
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Tue, 09 Apr 2002 03:00:00 GMT |
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Patrick McCu #3 / 23
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 Reversal of Stage IV Lung
Not meaning to start an argument but a search for something that would treat both or any is what trials are all about. As for the snowflake, the Sun would be an effective treatment for any of them. Quote:
> >The timing in my case strongly suggests the alternatives played an > >important role, but a delayed reaction of the chemo can not be ruled > >out. I don't know if this is common. I would have to ask the oncologists > >if it ever happens in stage IV lung cancer that after 12 weeks of > >ineffective chemo, the tumors suddenly start shrinking and dissappear as > >they did in my case. > >Bob Karjala http://essiac-info.org/Bob.html > My own theory is: > 1. That people are like snowflakes - - no two are exactly alike. > 2. The same holds true for cancerous tumors - - the chemical structure of each > tumor is unique - - no two are exactly alike. Some are very similar but none are > exactly alike. > For that reason, a chemical that works to combat a cancerous tumor in one > person may or may not work on a similar cancer in another person. It is a trial > and error situation at best and I personally will leave the trial and error choices > up to those who study it and practice it as their chosen profession. It is risky > to rely on professionals - - it is far, Far, FAR riskier to rely on amateurs such > as those on a news group - - Paul B. Dennis being foremost among them. > Your cancer tumors may have shrank into oblivion due to a shift in your > body chemistry that has NOTHING to do with any cancer treatment. > *********** > *S*******W* > **C*****O** > ***A***R*** > ****R*C**** > *****E***** > ***********
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Tue, 09 Apr 2002 03:00:00 GMT |
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bob.. #4 / 23
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 Reversal of Stage IV Lung
Quote:
> I concur with Doc Steve.....I am encouraged by your 'success' and hope > that it remains such. > I have > > personal knowledge of two remarkable successes with essiac, but high > > levels of CoQ-10 have been documented to eliminate {*filter*} tumors > > (Biochem. Biophys. Res. Comm., Mar. 30, 1994) An abstract of the BBRC > > article can be viewed by scrolling down to message #7 at: > > http://www.***.com/ > The only notes and questions I have on the abbreviated abstract is that > only 6/32 showed any measurable effect. That's slightly under 20%. > What is the comparison effect with various chemotherapies on 'high' risk > (which I don't understand based on the limited discussion in the > abstract). Was it more or less then the 20%?
Hi Mark, The 6/32 referred to the group on only 90mg of CoQ-10 per day. What I found most interesting was the 1/32 where the dose of CoQ-10 was increased and complete tumor regression occurred. The high dose CoQ-10 also had the same effect on an additional patient with documented post surgury residual tumor. Quote: > > Similarly the anti-tumor effects of selenium are documented in a J. AM. > > Med. Assoc.(JAMA) article > > at: http://www.***.com/ > > It is even possible that that the methyl sulfonyl methane(MSM) might > > have potentiated one of the other factors by increasing cell > > permeability. > > The timing in my case strongly suggests the alternatives played an > > important role, but a delayed reaction of the chemo can not be ruled > > out. I don't know if this is common. I would have to ask the oncologists > > if it ever happens in stage IV lung cancer that after 12 weeks of > > ineffective chemo, the tumors suddenly start shrinking and dissappear as > > they did in my case. > The main reason I responded to this point is that it is quite clear that > there is some residual effect. What I am interested in is the > possibility that the 'residual' effect may actually have a component > that is reflected as a faster recovery from the ill-effects of many of > the chemo treatments. I know that it took me approximately 5 months > after chemo to recover my full pre-cancer treatment weight. In > addition, it took probably another 5 months before I felt like I could > work at the same level as before the cancer. If there is a significant > improvement in the post-standard treatment recovery, by use of various > supplements, it is quite possible that the 'residual' effect may be > partly a quicker recovery of a variety of physiological and > immunological characteristics. This might be the main benefit of > pursueing 'alternative' methods in conjunction with conventional > methods.
I think you may be confused on the timing of my treatments. I want to clarify. My initial chemo was 3/31/98. 12 weeks later, prior to my 5th chemo in June, 1998, I added the complete alternative regimen. I continued with BOTH the chemo and alternatives, until the tenth chemo in early Oct., 1998. During the entire time on the alternatives I had hair loss and lowered white cells, but had no discomforting side effects from the chemo. I lived a normal life, worked full time, and gained some weight. I can't prove it, but after hearing of the difficulties others have had with chemo, I think the vitamins and herbs may have had a protective effect in my case. An interesting speculation is that the high levels of anti-oxidants I used actually neutralized the chemo and the alternatives were 100% responsible for tumor regression. Another is that something like the MSM potentiated the chemo. These are just two of many possibilities, and illustrate the need for good controlled studies. Quote: > > Recent communications from others duplicating my regimen have included a > > few cases where tumors have continued to shrink on the > > alternative regimen after chemo has been stopped because it was > > ineffective. Though anecdotal in nature, these people can be contacted > > and their stories verified. One of the most recent ones was a public > > posting on the Mediconsult lung cancer support board on Oct. 7, 1999. > > The board is at:
http://www.***.com/ ~supportgroup Also see John Primo's story at http://www.***.com/ Quote: > > It is my opinion that this preceding information is significant enough > > to justify a study under controlled conditions. It would be simple to > > take a group of stage IV lung cancer patients on carboplatin/taxol chemo > > and have them duplicate exactly the nontoxic regimen I used, to see if > > there are improved outcomes. If positive results are noted, then it > > would take a much larger study to determine which components are > > necessary and which are irrelevant, chemo included. > Yes, but as most of us on this board agree, it is worth considering as > long as the proper studies are used to dissect the important aspects of > possible changes in efficacy. > > Is there anyone out there willing and able to do such a study?] > I don't know which oncology department would most likely be interested, > but certainly, MD Anderson is one of the institutions that has received > quite a bit of funding to study alternatives. > Regards and congratulations.... > MJK
Thanks for your support. Quote: > > Bob Karjala http://www.***.com/
Sent via Deja.com http://www.***.com/ Before you buy.
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Wed, 10 Apr 2002 03:00:00 GMT |
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#5 / 23
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 Reversal of Stage IV Lung
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Fri, 19 Jun 1992 00:00:00 GMT |
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d #6 / 23
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 Reversal of Stage IV Lung
How high were the increased doses of CoQ-10? Are there any side effects from taking this much Co-Q10. Any particiular brands recommended? as Co-Q10 is rather expensive, are the cheaper brands as effective as the more expensive brands? What might be the difference? Shanti (and thanks :-) -d
The 6/32 referred to the group on only 90mg of CoQ-10 per day. Quote: > What I found most interesting was the 1/32 where the dose of CoQ-10 was > increased and complete tumor regression occurred. The high dose CoQ-10 > also had the same effect on an additional patient with documented post > surgury residual tumor.
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Thu, 11 Apr 2002 03:00:00 GMT |
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bob.. #7 / 23
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 Reversal of Stage IV Lung
Quote: > How high were the increased doses of CoQ-10?
390 mg. I copied the abstract below. Quote: >Are there any side effects from taking this much Co-Q10.
No. It occurs naturally in every cell in your body, but is decreased in old age and in cancer. I have several links for info on CoQ-10 at: http://www.***.com/ I have been taking 400 or 300 mg a day since 6/98 and have had no problems. Quote: >Any particiular brands recommended? As Co-Q10 is rather expensive, are >the cheaper brands as effective as the more expensive > brands? What might be the difference?
I used Vitaline brand because it comes in 100 and 200 mg chewable wafers with the CoQ-10 emulsified in vit. E for better absorption. I have read that CoQ-10 is best taken with a meal containing some lipids, to aid in absorption. Any CoQ-10 in gel caps will also work, but plain dry powder capsules may not be as effective, due to lowered absorption....Bob K. Quote: > Shanti (and thanks :-) > -d
copy: [Partial and complete regression of {*filter*} cancer in patients in relation to dosage of coenzyme Q10. Biochem Biophys Res Commun (UNITED STATES) Mar 30 1994 Relationships of nutrition and vitamins to the genesis and prevention of cancer are increasingly evident. In a clinical protocol, 32 patients having -"high-risk"- {*filter*} cancer were treated with antioxidants, fatty acids, and 90 mg. of CoQ10. Six of the 32 patients showed partial tumor regression. In one of these 6 cases, the dosage of CoQ10 was increased to 390 mg. In one month, the tumor was no longer palpable and in another month, mammography confirmed the absence of tumor. Encouraged, another case having a verified {*filter*} tumor, after non-radical surgery and with verified residual tumor in the tumor bed was then treated with 300 mg. CoQ10. After 3 months, the patient was in excellent clinical condition and there was no residual tumor tissue.]
Sent via Deja.com http://www.***.com/ Before you buy.
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Thu, 11 Apr 2002 03:00:00 GMT |
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Stev #8 / 23
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 Reversal of Stage IV Lung
CoQ10 is a biochemical vital to every cell in the human body, playing a crucial role in so many essential activities within our system that detailing all of them requires a medical journal! Its importance is underscored by understanding that CoQ10 -- one of the most powerful antioxidants known to science -- is also known as ubiquinone, taken from the Latin word ubique, meaning "everywhere". The English word ubiquitous, meaning "appearing everywhere at the same time", also gives a hint as to the highly regarded nature of CoQ10. Despite its power and presence, quality pharmaceutical CoQ10 is hard to attain and costly as well. In addition, until Changes International and Twinlab Corporation set out to bring a superior product to market at a reasonable price, CoQ10's bioavailability - the body's ability to access ingested forms - was considered marginal at best. But now, thanks to Tru-Sorb? technology from Changes, Advanced CoQ10 is available in a soft gelatin capsule shown in scientific studies to be in excess of 900% more bioavailable than traditional crystalline CoQ10 in hard gelatin capsules offered by many in the marketplace. Tru-Sorb? technology in Changes Advanced CoQ10 represents an industry first!
Steve Quote:
> How high were the increased doses of CoQ-10? Are there any side effects from > taking this much Co-Q10. Any particiular brands recommended? as Co-Q10 is > rather expensive, are the cheaper brands as effective as the more expensive > brands? What might be the difference? > Shanti (and thanks :-) > -d
> The 6/32 referred to the group on only 90mg of CoQ-10 per day. > > What I found most interesting was the 1/32 where the dose of CoQ-10 was > > increased and complete tumor regression occurred. The high dose CoQ-10 > > also had the same effect on an additional patient with documented post > > surgury residual tumor.
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Thu, 11 Apr 2002 03:00:00 GMT |
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#9 / 23
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 Reversal of Stage IV Lung
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Fri, 19 Jun 1992 00:00:00 GMT |
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Mark J. Koebb #10 / 23
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 Reversal of Stage IV Lung
Hi Bob, Quote:
> Hi Mark, The 6/32 referred to the group on only 90mg of CoQ-10 per day. > What I found most interesting was the 1/32 where the dose of CoQ-10 was > increased and complete tumor regression occurred. The high dose CoQ-10 > also had the same effect on an additional patient with documented post > surgury residual tumor.
Still these are pretty small fractions. I am interested in the comparison of the rates. Obviously more studies need to be done to ascertain what is causing what effect. Quote: > > The main reason I responded to this point is that it is quite clear > that > > there is some residual effect. What I am interested in is the > > possibility that the 'residual' effect may actually have a component > > that is reflected as a faster recovery from the ill-effects of many of > > the chemo treatments. I know that it took me approximately 5 months > > after chemo to recover my full pre-cancer treatment weight. In > > addition, it took probably another 5 months before I felt like I could > > work at the same level as before the cancer. If there is a > significant > > improvement in the post-standard treatment recovery, by use of various > > supplements, it is quite possible that the 'residual' effect may be > > partly a quicker recovery of a variety of physiological and > > immunological characteristics. This might be the main benefit of > > pursueing 'alternative' methods in conjunction with conventional > > methods. > I think you may be confused on the timing of my treatments. I want to > clarify. My initial chemo was 3/31/98. 12 weeks later, prior to my 5th > chemo in June, 1998, I added the complete alternative regimen. I > continued with BOTH the chemo and alternatives, until the tenth chemo in > early Oct., 1998. During the entire time on the alternatives I had hair > loss and lowered white cells, but had no discomforting side effects from > the chemo. I lived a normal life, worked full time, and gained some > weight. I can't prove it, but after hearing of the difficulties others > have had with chemo, I think the vitamins and herbs may have had a > protective effect in my case. An interesting speculation is that the > high levels of anti-oxidants I used actually neutralized the chemo and > the alternatives were 100% responsible for tumor regression. Another is > that something like the MSM potentiated the chemo. These are just two of > many possibilities, and illustrate the need for good controlled studies.
I understand but I think my comments could also apply to commensurate treatment with conventional chemotherapy as well as doing the 'right' types of diet while on chemo. There are actually some pretty good websites on dietetics during treatment for cancer. I'll have to track some of them down. Quote: > >http://www.mediconsult.com/mc/mcsite.nsf/conditionnav/lung~supportgroup
I'll look it up. I, however, have been usually disappointed at the quality of the evidence with respect to the claims of the altmed pages. Quote: > Also see John Primo's story at http://essiac-info.org/Bobstory2.html > > Regards and congratulations.... > > MJK > Thanks for your support.
We're all on the same waters....just sometimes in different types of boats. MJK Quote: > > > Bob Karjala http://essiac-info.org/Bob.html > Sent via Deja.com http://www.deja.com/ > Before you buy.
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Fri, 12 Apr 2002 03:00:00 GMT |
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bob.. #11 / 23
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 Reversal of Stage IV Lung
Quote: > Hi Bob,
> > Hi Mark, The 6/32 referred to the group on only 90mg of CoQ-10 per day. > > What I found most interesting was the 1/32 where the dose of CoQ-10 was > > increased and complete tumor regression occurred. The high dose CoQ-10 > > also had the same effect on an additional patient with documented post > > surgury residual tumor. > Still these are pretty small fractions. I am interested in the > comparison of the rates. Obviously more studies need to be done to > ascertain what is causing what effect.
I agree. More studies are needed. I wonder if these authors did any followup studies? Quote: > > > The main reason I responded to this point is that it is quite clear > > that > > > there is some residual effect. What I am interested in is the > > > possibility that the 'residual' effect may actually have a component > > > that is reflected as a faster recovery from the ill-effects of many of > > > the chemo treatments. I know that it took me approximately 5 months > > > after chemo to recover my full pre-cancer treatment weight. In > > > addition, it took probably another 5 months before I felt like I could > > > work at the same level as before the cancer. If there is a > > significant > > > improvement in the post-standard treatment recovery, by use of various > > > supplements, it is quite possible that the 'residual' effect may be > > > partly a quicker recovery of a variety of physiological and > > > immunological characteristics. This might be the main benefit of > > > pursueing 'alternative' methods in conjunction with conventional > > > methods. > > I think you may be confused on the timing of my treatments. I want to > > clarify. My initial chemo was 3/31/98. 12 weeks later, prior to my 5th > > chemo in June, 1998, I added the complete alternative regimen. I > > continued with BOTH the chemo and alternatives, until the tenth chemo in > > early Oct., 1998. During the entire time on the alternatives I had hair > > loss and lowered white cells, but had no discomforting side effects from > > the chemo. I lived a normal life, worked full time, and gained some > > weight. I can't prove it, but after hearing of the difficulties others > > have had with chemo, I think the vitamins and herbs may have had a > > protective effect in my case. An interesting speculation is that the > > high levels of anti-oxidants I used actually neutralized the chemo and > > the alternatives were 100% responsible for tumor regression. Another is > > that something like the MSM potentiated the chemo. These are just two of > > many possibilities, and illustrate the need for good controlled studies. > I understand but I think my comments could also apply to commensurate > treatment with conventional chemotherapy as well as doing the 'right' > types of diet while on chemo. There are actually some pretty good > websites on dietetics during treatment for cancer. I'll have to track > some of them down.
I agree that the dietary/nutritional component may be important, both in minimizing chemo side effects and in accelerated post chemo recoveries. Quote: >http://www.mediconsult.com/mc/mcsite.nsf/conditionnav/lung~supportgroup > I'll look it up. I, however, have been usually disappointed at the > quality of the evidence with respect to the claims of the altmed
pages. It is anecdotal, but it is an amazing story, and I have no reason yet to doubt it. Look for the post with "65%" in the first line, dated Oct. 7, 1999. Quote: > > Also see John Primo's story at http://essiac-info.org/Bobstory2.html > > > Regards and congratulations.... > > > MJK > > Thanks for your support. > We're all on the same waters....just sometimes in different types of > boats. > MJK
Just as long as we can all keep on paddling Quote: > > > > Bob Karjala http://essiac-info.org/Bob.html > > Sent via Deja.com http://www.deja.com/ > > Before you buy.
Sent via Deja.com http://www.deja.com/ Before you buy.
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Sat, 13 Apr 2002 03:00:00 GMT |
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#12 / 23
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 Reversal of Stage IV Lung
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Fri, 19 Jun 1992 00:00:00 GMT |
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d #13 / 23
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 Reversal of Stage IV Lung
In all of the studies I read, people with cancer who benefited from taking CoQ-10, were on chemotherapy and/or radiation therapies. Could it be possible that the large doses required to effect regression of the tumor/s (300+ mg) was/is necessary because of the need for the CoQ-10 (a potent anti-oxidant) to combat the effects of the chemo and radiation? Therefore, might it be possible that smaller doses could be equally effective in patients with tumors who were not receiving chemotherapy or radiation? Also, would other factors count? such as the individual's dietary habits? are there any herbs that contain or promote the production of CoQ-10? I have read that organ meats and seafoods contain the largest amounts of CoQ-10 naturally. How about vegetables/fruits? -d
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Sat, 13 Apr 2002 03:00:00 GMT |
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bob.. #14 / 23
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 Reversal of Stage IV Lung
Quote: > In all of the studies I read, people with cancer who benefited from taking > CoQ-10, were on chemotherapy and/or radiation therapies. Could it be possible > that the large doses required to effect regression of the tumor/s (300+ mg) > was/is necessary because of the need for the CoQ-10 (a potent anti-oxidant) to > combat the effects of the chemo and radiation? Therefore, might it be > possible that smaller doses could be equally effective in patients with tumors > who were not receiving chemotherapy or radiation?
The abstract I posted in message #14 on 10/24 appears to show a dose response(with admittedly low sample numbers). The low doses were not as effective as 390mg, and these patients were not on chemo. My guess is that the CoQ-10 gets distributed in every cell in the body, and it just takes a lot to raise the average cellular level to the point where effects are observed. I have no experimental basis for this, just a common sense guess. I have read somewhere that 240mg/day is the absolute minimum for treating chronic disease, but I don't have that reference. I have also read of another study showing decreased {*filter*} levels of CoQ10 in a large population of cancer patients compared to a non cancer group. Quote: > Also, would other factors count? such as the individual's dietary habits? > are there any herbs that contain or promote the production of CoQ-10? I have > read that organ meats and seafoods contain the largest amounts of CoQ-10 > naturally. How about vegetables/fruits?
I don't know of anything to promote CoQ-10, and I suspect it would be difficult to obtain "therapeutic" levels by diet alone. I continue on 300mg a day as a preventative. Sent via Deja.com http://www.***.com/ Before you buy.
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Sun, 14 Apr 2002 03:00:00 GMT |
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