Please Help. * Help * Help * 
Author Message
 Please Help. * Help * Help *

     *************************************************************
     *      PLEASE HELP ME HELP A WONDERFUL TWO YEAR OLD BOY     *
     *************************************************************

I truly need your help.

A wonderful little boy I know has been diagnosed with Multicentric
Osteosarcoma.  Apparently, the Cells of this type of Cancer are not
responsive to Raditation Therapy (as stated by his Pediatrict
Oncologist).  Also due to the nature of the diagnosis, Surgery is
not an option.
 (Several small lumps in each lung, Tubula of one leg, and small
 legions in several vertebrates have been identified)

The Oncologists have recommended and started him on Chemotherapy.
He is receiving Doxorubicin (Adriamycin) and Ifosfamide (Ifex)
starting tonight.

Here is where your help is needed:

  1. Does anyone have a feeling about this treatment.  Is there a
     "Better" one out there?

  2. How can we counter some of the negative effects of the
     Chemotherapy, without having a negative effect on the patient
     or treatment.

     Possible side effects include:
        Common                             Rare
        ===============================    ======================
        Low {*filter*} Count,                   Kidney Damage,
        Nausea/Vomiting,                   Fatigue/Weekness,
        Abnormal Liver function Tests,     Heart Damage,
        Hair Loss,                         Confusion,
        Bladder Irritation, (Urine Red)    Infection (Digest.)
        Mouth Sores,                       Seizures (very rare)
        Sensitive Skin,

  3. For the last few days, I have conducted extensive research
     into nutritional changes, herbal alternatives, etc.
     But I am at a loss!  I know the general recommendation for
     {*filter*}s is to change their diet and consume more fruit and
     vegetables, but how would one deal with a kid who doesn't
     like those things and has no appetite?

     I also know of the possible benefits of Antioxidants, Other
     Vitamins, Soybeans, Green Tea, Garlic Oil, Fish Oil, Ginseng,
     Shi-Quan-Da-Bu-Tang, Co-Q10, etc..  But, I have not seen dosage
     recommendation for a two year old boy (about 26lb, 13Kilo).
     His Doctor, does not mind us using any of these supplements, as
     long us they don't interfere with the Chemotherapy.

     Also a recommendation has been made to lower his {*filter*} sugar
     level while maintaining a High-Protein, High-Carbohydrate
     diet.  How can I exactly do this?

  4. Does anyone know of Any ongoing research in this area?

     Do you know of any similar cases?

     Is there anyone in medical field you think would be able to
     provide some information on this topic?

     Do you know if any specific center in the Country is best
     equipped to handle this problem?  Or do you know of a reknown
     (Nutritional/Pediatric/Regular) Oncologist you could recommend?

     Do you know of alternative treatment centers that could have
     success with this?

  5. Do you know of Ancient Oriental Therapy?
     Would Qi or "Spiritual" counseling help?
     Could acupunture help?
     Could a religious cerimoney help?
     (Any idea is helful)

  6. Any other relevant idea you might have is greatly appreciated.

*************************************************************
*     The way the Parents (and I) see it, If an option      *
*     exists that is not harmful to the child and has a     *
*     possibility to help the Child, It is something        *
*     worth trying!                                         *
*     The child lives in Washington, DC area.               *
*************************************************************
*     Please be as specific and detailed as possible        *
*     Hopefully, this same information will be used to      *
*     help countless other individuals.                     *
*************************************************************

ANY AND ALL SPECIFIC RECOMMENDATION IS WELCOMED AND APPRECIATED.
Your prayers are also needed.


    or by calling Kavosh at (202) 543-7833

 GOD BLESS YOU.  GOD BLESS YOU.  GOD BLESS YOU.  GOD BLESS YOU.
THANK YOU. THANK YOU. THANK YOU. THANK YOU. THANK YOU. THANK YOU.
 GOD BLESS YOU.  GOD BLESS YOU.  GOD BLESS YOU.  GOD BLESS YOU.
THANK YOU. THANK YOU. THANK YOU. THANK YOU. THANK YOU. THANK YOU.



Wed, 19 Nov 1997 03:00:00 GMT
 Please Help. * Help * Help *
please send correct address
mail was returned.




Thu, 20 Nov 1997 03:00:00 GMT
 Please Help. * Help * Help *

Quote:
> please send correct address
> mail was returned.



         With me too.  Don't use "reply."  E-mail at the address below

         why the "reply" address doesn't correspond--but presume it's
         a "DGS thing."

         Cheers,

         Tom Remington



Thu, 20 Nov 1997 03:00:00 GMT
 Please Help. * Help * Help *
Sorry for the inconvenience Everyone!  Apparently, Reply function does not
work.  


Your Help is needed.

Thank you.



Sat, 22 Nov 1997 03:00:00 GMT
 Please Help. * Help * Help *
simionton clinic


Sat, 22 Nov 1997 03:00:00 GMT
 
 [ 5 post ] 

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