diffuse connective tissue disorder 
Author Message
 diffuse connective tissue disorder

For approx.the past 18 years I've had a chronic immune system/connective
tissue disorder, called everything from SLE, to mixed connective tissue
disorder to--most currently--diffuse connective tissue disorder: usually
high normal, low positive range ANA's, past history of Hashimoto's
thyroiditis,etc.--the usual, irritating, exhausting, painful history
that appears to be untreatable, with a fairly profound impact on quality
of life, ability to function well, etc.  In the past 4 months, I've
developed red and inflamed/tender swellings on all my fingers, located
between directly below the nail bed and the middle(large) knuckles. The
area directly below the knuckles are the most affected, very red, and
painful upon touch. The rest of the affected areas have "nodes"/lumps on
the sides;also, stiffness in fingers, and serious Raynaud's.  Any
thoughts on connection to the overall disorder, or treatment ideas would
be very very appreciated.  Please respond by e-mail, and many thanks!
Beth


Fri, 05 Sep 1997 02:18:33 GMT
 diffuse connective tissue disorder

Quote:

> For approx.the past 18 years I've had a chronic immune system/connective
> tissue disorder, called everything from SLE, to mixed connective tissue
> disorder to--most currently--diffuse connective tissue disorder: usually
> high normal, low positive range ANA's, past history of Hashimoto's
> thyroiditis,etc.--the usual, irritating, exhausting, painful history
> that appears to be untreatable, with a fairly profound impact on quality
> of life, ability to function well, etc.  In the past 4 months, I've
> developed red and inflamed/tender swellings on all my fingers, located
> between directly below the nail bed and the middle(large) knuckles. The
> area directly below the knuckles are the most affected, very red, and
> painful upon touch. The rest of the affected areas have "nodes"/lumps on
> the sides;also, stiffness in fingers, and serious Raynaud's.  Any
> thoughts on connection to the overall disorder, or treatment ideas would
> be very very appreciated.  Please respond by e-mail, and many thanks!
> Beth

The Raynaud's and other recent symptoms are very suggestive of scleroderma.  If
the duration is that long, you might have the CREST version rather than diffuse
scleroderma (I have CREST).  In most cases, a specific antibody study can
isolate scleroderma.  For example, an anti-centromere antibody test, if
positive, is almost 100% correlated with CREST, while there are other
antibodies which are almost 100% correlated with diffuse scleroderma.  If all
of these antibodies are negative, you may never get a diffinite diagnosis.

You can email directly if you wish more information on possible treatments, but
I would suggest you try to get the antibody studies done to see what you may be
dealing with.

                                        Ed Harris



Fri, 05 Sep 1997 21:00:35 GMT
 
 [ 2 post ] 

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