unknown digestive problem need advice 
Author Message
 unknown digestive problem need advice

I been having trouble holding down foods since I was 12 years old aprox. I'm
23 going on 24 now. I don't throw up and out cause I don't want it to cause
a lot more problems than its worth so I swallow it back down. Medication
doesn't seem to work except for tigan and compazine but compazine causes
heart problems and unfornately tigan puts me to sleep so I just use it if I
absolutely need it. Antacids don't work and I'm allergic to reglan. I've had
3 endoscopies (recent one showed inflammation) 2 upper gi's (one was a
hambuger and it showed I have a slow digestive system) 1 ph study they
showed acid reflux but the surgeon rejected me and it seems it was pretty
low. THe other tube down the nose where you drink water all the time I
forgot the name. It was negative for anything. Small bowel follow through
cause I was having pains was negative. The pains went away. gastric emptying
test showed negative results. And the psychologist and dietician and I kind
of proved its not in my head. I don't know what to do. I'm tired of going to
the doctors and I don't know what it is.


Thu, 06 Jan 2005 10:24:32 GMT
 unknown digestive problem need advice
Yuck!  Is this for real ?  Do you rechew it?
What exactly was the "allergic" reaction to Reglan?
How do the psychologist and dietician know/prove that it's not psychological?

Have you been screened for:
pica -  iron deficiency anemia?
connective tissue disorders (which can affect the esophagus)
anorexia
thyroid
achalasia
Is it possible that your esophagus is con{*filter*}ly small?
What do you eat and when and how much?  Does the same thing happen with fluids?
and/or very small meals?

How much do you weigh and what is your heigth?
have you tried an "elimination diet"?
what do you mean by "it was a hambuger"??
have you been screened for metabolic diseases?
weird variant of epilepsy?
have you been screened by a specialist in eating and/or childhood disorders?
do others in the family have similar problems?
what other diseases/conditions run in your family?
What happened at age 12? (trauma? menses? birth-control pill? weight gain? etc
etc)

Have you told the doctors about your errr..unusual interests.
http://www.***.com/ :nsalem5%40worldnet.att.net&h...

Spanking..a form of control.   Vomiting and swallowing..another form of control?

Here's some of the above-mentioned
http://www.***.com/
http://www.***.com/
http://www.***.com/
http://www.***.com/

Feel free to answer some of the above, but I believe you do need to see a doctor
who has lots of time to go over your medical records, history and try to sort
out some of the above.
HTH and JMO
J-not a doctor
PS of course you'd have some acid from this.  If this isn't sorted out quickly
your teeth will rot, your heart could be seriously damaged, perhaps other
problems too.

Quote:

> I been having trouble holding down foods since I was 12 years old aprox. I'm
> 23 going on 24 now. I don't throw up and out cause I don't want it to cause
> a lot more problems than its worth so I swallow it back down. Medication
> doesn't seem to work except for tigan and compazine but compazine causes
> heart problems and unfornately tigan puts me to sleep so I just use it if I
> absolutely need it. Antacids don't work and I'm allergic to reglan. I've had
> 3 endoscopies (recent one showed inflammation) 2 upper gi's (one was a
> hambuger and it showed I have a slow digestive system) 1 ph study they
> showed acid reflux but the surgeon rejected me and it seems it was pretty
> low. THe other tube down the nose where you drink water all the time I
> forgot the name. It was negative for anything. Small bowel follow through
> cause I was having pains was negative. The pains went away. gastric emptying
> test showed negative results. And the psychologist and dietician and I kind
> of proved its not in my head. I don't know what to do. I'm tired of going to
> the doctors and I don't know what it is.



Fri, 07 Jan 2005 02:48:47 GMT
 unknown digestive problem need advice


Quote:
> Yuck!  Is this for real ? Its for real Do you rechew it? yes
> What exactly was the "allergic" reaction to Reglan? I was shaking stiff

muscles I was in the urgent care center at the end. (that was after my
appendix was taken out)
Quote:
> How do the psychologist and dietician know/prove that it's not

psychological?
I can hold down liquids if it was pychological I wouldn't be able to hold
down anything.
Quote:
> Have you been screened for:
> pica -  iron deficiency anemia? I had many {*filter*} tests my guess its been
checked.
> connective tissue disorders (which can affect the esophagus) never heard

of it if it shows in a endscopy though it would have shown up by now.
Quote:
> anorexia Anorexia is not eating even in the medical form of it. I eat.
> thyroid yes negative
> achalasia never heard of it.
> Is it possible that your esophagus is con{*filter*}ly small? it would show on

the endscopy by now.
Quote:
> What do you eat and when and how much?  Does the same thing happen with
fluids?
> and/or very small meals? Even fruits and vegies give me problems pouts. I

miss strawberries. Liquids I'm ok. Very small meals depends on what cooking.net">food
your  talking about not how big the meal is.
Quote:

> How much do you weigh and what is your heigth? 179 (been loosing since I

been put on a diet) and 5'2
Quote:
> have you tried an "elimination diet"? I'm trying bland soft solid diet

works some of the time.
Quote:
> what do you mean by "it was a hambuger"?? Hambuger upper gi. You eat a

hamburger as well and it shows how it gets digested.
Quote:
> have you been screened for metabolic diseases? huh?
> weird variant of epilepsy? you got to be kidding.
> have you been screened by a specialist in eating and/or childhood

disorders? I been seen by 4 gi doctors one was from ucla.
Quote:
> do others in the family have similar problems? nope
> what other diseases/conditions run in your family? High {*filter*} pressure.
I'm not sure.
> What happened at age 12? (trauma? menses? birth-control pill? weight gain?
etc
> etc) nothing. It just started around than and I can't even firugre out if

thats when it started. And I don't use birth control cause I don't do the
one thing that makes a women need birth control.
Quote:

> Have you told the doctors about your errr..unusual interests. no thanks a
lot.

http://www.***.com/ :nsalem5%40worldnet.att.net&h...
=&ie=UTF-8&start=100&sa=N
Quote:

> Spanking..a form of control.   Vomiting and swallowing..another form of
control?
> if it gets out of control I'll be dead. Its worse than bulumia. Bulumia is

on purpose this isn't. I don't even know whne it happens half the time.
Quote:
> Here's some of the above-mentioned
> http://www.***.com/
> http://www.***.com/
> http://www.***.com/
> http://www.***.com/

> Feel free to answer some of the above, but I believe you do need to see a
doctor
> who has lots of time to go over your medical records, history and try to
sort
> out some of the above.
> HTH and JMO
> J-not a doctor
> PS of course you'd have some acid from this.  If this isn't sorted out
quickly
> your teeth will rot, your heart could be seriously damaged, perhaps other
> problems too.


> > I been having trouble holding down foods since I was 12 years old aprox.
I'm
> > 23 going on 24 now. I don't throw up and out cause I don't want it to
cause
> > a lot more problems than its worth so I swallow it back down. Medication
> > doesn't seem to work except for tigan and compazine but compazine causes
> > heart problems and unfornately tigan puts me to sleep so I just use it
if I
> > absolutely need it. Antacids don't work and I'm allergic to reglan. I've
had
> > 3 endoscopies (recent one showed inflammation) 2 upper gi's (one was a
> > hambuger and it showed I have a slow digestive system) 1 ph study they
> > showed acid reflux but the surgeon rejected me and it seems it was
pretty
> > low. THe other tube down the nose where you drink water all the time I
> > forgot the name. It was negative for anything. Small bowel follow
through
> > cause I was having pains was negative. The pains went away. gastric
emptying
> > test showed negative results. And the psychologist and dietician and I
kind
> > of proved its not in my head. I don't know what to do. I'm tired of
going to
> > the doctors and I don't know what it is.



Fri, 07 Jan 2005 02:58:24 GMT
 unknown digestive problem need advice
hmmm...ask to be screened for porphyria by a knowledgeable (in that area)
haematologist.  Apparently Reglan is on the "unsafe" list for people with (some
types) of porphyria.

Did you get the post-operative report on the appendix?
Was there really something wrong with it or were you having abdominal pains and
they just assumed?

And no I'm not kidding about the others, some require {*filter*}work (scleroderma,
lupus etc), some require some detective work.
Anemia doesn't always occur with pica but that was a long-shot.

Otherwise, I've given you a list of things to ask about.  Best I can do.

Here's a part-list of neurological/neuromuscular/metabolic disorders (and urls
for you to make lists).  Have you seen a neurologist?
J
PS http://www.***.com/
seems to muck with the dopamine in the brain.  What you describe seems to be
under "rare" on their list.

Tried a very mild dose of Elavil - muscle relaxant? (I'm reluctant to say
anything because some meds could make whatever is causing this worse). and I'm
not sure it should be taken with a heart problem.

Quote:



> > Yuck!  Is this for real ? Its for real Do you rechew it? yes
> > What exactly was the "allergic" reaction to Reglan? I was shaking stiff
> muscles I was in the urgent care center at the end. (that was after my
> appendix was taken out)



Fri, 07 Jan 2005 07:33:56 GMT
 unknown digestive problem need advice
http://neuro-www.mgh.harvard.edu:16080/forum/

urls

Quote:
> for you to make lists).  Have you seen a neurologist?



Fri, 07 Jan 2005 07:47:30 GMT
 unknown digestive problem need advice


Quote:
> hmmm...ask to be screened for porphyria by a knowledgeable (in that area)
> haematologist.  Apparently Reglan is on the "unsafe" list for people with
(some
> types) of porphyria.

is porphyria curable or fixable or even where you can stop the vommiting if
you take the meds that would would help this.
Quote:
> Did you get the post-operative report on the appendix?
> Was there really something wrong with it or were you having abdominal
pains and
> they just assumed?

my doctor asked for one when I wanted her to send a letter to my school
people anyways it showed chronic appendicitis.
Quote:
> And no I'm not kidding about the others, some require {*filter*}work
(scleroderma,
> lupus etc), some require some detective work.
> Anemia doesn't always occur with pica but that was a long-shot.

nothing that I know of than
Quote:
> Otherwise, I've given you a list of things to ask about.  Best I can do.

> Here's a part-list of neurological/neuromuscular/metabolic disorders (and
urls
> for you to make lists).  Have you seen a neurologist? not yet. Why would I

need to see a neorologist its a stomach problem isn't it.
Quote:
> J
> PS http://www.***.com/
> seems to muck with the dopamine in the brain.  What you describe seems to
be
> under "rare" on their list.

> Tried a very mild dose of Elavil - muscle relaxant? (I'm reluctant to say
> anything because some meds could make whatever is causing this worse). and
I'm
> not sure it should be taken with a heart problem.
> no.



> > > Yuck!  Is this for real ? Its for real Do you rechew it? yes
> > > What exactly was the "allergic" reaction to Reglan? I was shaking
stiff
> > muscles I was in the urgent care center at the end. (that was after my
> > appendix was taken out)



Fri, 07 Jan 2005 08:17:55 GMT
 unknown digestive problem need advice
Question:
If you eat a little and don't sit, don't bend, does the cooking.net">food still come up?
If so, does it come up immediately, or how much time after you eat?

J-still working on this.

Quote:



> > hmmm...ask to be screened for porphyria by a knowledgeable (in that area)
> > haematologist.  Apparently Reglan is on the "unsafe" list for people with
> (some
> > types) of porphyria.
> is porphyria curable or fixable or even where you can stop the vommiting if
> you take the meds that would would help this.
> > Did you get the post-operative report on the appendix?
> > Was there really something wrong with it or were you having abdominal
> pains and
> > they just assumed?
> my doctor asked for one when I wanted her to send a letter to my school
> people anyways it showed chronic appendicitis.



Fri, 07 Jan 2005 10:15:09 GMT
 unknown digestive problem need advice
I don't know the answer for sure on that one but I know from experience
walking doesn't help. It takes fif{*filter*} minutes for my stomache to start
usually sometimes later. The hamburger upper gi took about 4-6 hours just to
get through my system. And I was walking.

Quote:
> Question:
> If you eat a little and don't sit, don't bend, does the cooking.net">food still come
up?
> If so, does it come up immediately, or how much time after you eat?

> J-still working on this.




> > > hmmm...ask to be screened for porphyria by a knowledgeable (in that
area)
> > > haematologist.  Apparently Reglan is on the "unsafe" list for people
with
> > (some
> > > types) of porphyria.
> > is porphyria curable or fixable or even where you can stop the vommiting
if
> > you take the meds that would would help this.
> > > Did you get the post-operative report on the appendix?
> > > Was there really something wrong with it or were you having abdominal
> > pains and
> > > they just assumed?
> > my doctor asked for one when I wanted her to send a letter to my school
> > people anyways it showed chronic appendicitis.



Fri, 07 Jan 2005 10:36:47 GMT
 unknown digestive problem need advice
You didn't answer my questions so i'll try a different one.
Does the cooking.net">food come up just when you're lying down and/or sleeping? (or anytime)


Fri, 07 Jan 2005 16:12:05 GMT
 unknown digestive problem need advice
actually it happens less often when I'm lying down than when I'm sitting or
standing. And it never happens when I'm sleeping thats whats makes taking
tigan a problem.

Quote:
> You didn't answer my questions so i'll try a different one.
> Does the cooking.net">food come up just when you're lying down and/or sleeping? (or
anytime)





Fri, 07 Jan 2005 16:15:10 GMT
 unknown digestive problem need advice
ok, so the tigan stops the vomiting but makes you sleepy (therefore
non-functional during daytime, right?)
And I think you've just ruled out  a severe form of GERD, since you say it
happens less often when lying down. (unless you don't eat within 4 hours of
lying down).  But given what you've said, it wouldn't be prudent to do so
anyway.  The cooking.net">food coming up if/when you were sleeping could {*filter*}you.

You don't know if you've been checked for achalasia? (right?)
http://www.***.com/

(please read and/or print this out).

You're talking to a psychologist but don't tell him/her about some things
(which might be relevant).
You haven't been screened by a psychiatrist who specializes in childhood eating
disorders? and/or a specialist of internal medicine with a degree in psychiatry
(to cover both bases)
You haven't pursued why Compazine affected your heart? (right?) or was it just
a fear that it *would* affect your heart?
You mentioned pains that went away.  What pains?  abdominal?
It's interesting that Compazine is also used to treat (some forms of)
porphyria.
http://www.***.com/
but it sure is a heavy-duty med and if you did have the pain-related types of
porphyria, the way to avoid "pain attacks" is stay out of the sun, avoid
stress, estrogens, eat frequent small high-carb meals, avoid "unsafe"
medications.  There's also medications specific for porphyria too.

Part of me says this might all be psychiatric, the other part says well,
perhaps the doctors you've seen just aren't considering some of the rarer
conditions.  I know (or you say) you're tired of seeing doctors.  Frustrating I
know, if they keep not being able to come up with answers (and better yet) good
solutions.

Have you posted a comprehensive summary to alt.support.schizophrenia ? (just to
see if anyone else there has same problem as you describe?).  On the other
hand, some people with "schizo" also might be mis-diagnosed and/or have
physical and mental problems (yet undiagnosed) and/or side-effects of
heavy-duty medications.  So it might just confuse things even more.
Also and perhaps more relevant alt.support.eating-disord
I see some posts over there with similar (vomiit then re-swallow)
http://www.***.com/ %20swallow&safe=images&ie=I...

(fifth thread down)
and ....

http://www.***.com/
Eating Disorders Not Otherwise Specified (EDNOS)

There are variants of disordered eating that do not meet the diagnostic
criteria for anorexia nervosa or bulimia nervosa.
These are still eating disorders requiring necessary treatment. A substantial
number of individuals with eating disorders
fit into this category. Individuals with eating disordered behaviors that
resemble anorexia nervosa or bulimia nervosa
but whose eating behaviors do not meet one or more essential diagnostic
criteria may be diagnosed with EDNOS.
Examples include: individuals who meet criteria for anorexia nervosa but
continue to menstruate, individuals who
regularly purge but do not binge eat, and individuals who meet criteria for
bulimia nervosa, but binge eat less than
twice weekly, etc. Being diagnosed as having an "Eating Disorder not Otherwise
Specified" does not mean that you are
in any less danger or that you suffer any less. <snip>

It would probably be of great help if the psychologist would help you get
copies of all your tests, labs etc.
Make a list of what has /hasn't been ruled out.
Try to find out your relatives' medical conditions.  Can you ask
parents/grandparents?

Also I've provided you with many "possibles".  Make a list of those too.
Then be honest with the psychologist (about everything).  Then ask him/her to
help you get referred to the best doctor in your area who might help to rule
some more things in or out.

I know it's hard to accept that (in the end) it might be psychological.  The
subconscious part of the brain can sure do weird things.  So it's possible that
this is your brain's way of coping with your overweight (not a healthy way of
doing it though).

Sure too complicated for newsgroups (or me).
Wish I could help more but I'm honestly tapped with ideas (other than the ones
previously provided), so the best thing you can do, is follow up on some of the
ones suggested.
Good luck.
J
PS If you find out what it is and/or a/the medication that helps, how about
updating us on this newsgroup?  Thanks.

Quote:

> actually it happens less often when I'm lying down than when I'm sitting or
> standing. And it never happens when I'm sleeping thats whats makes taking
> tigan a problem.


> > You didn't answer my questions so i'll try a different one.
> > Does the cooking.net">food come up just when you're lying down and/or sleeping? (or
> anytime)



Sat, 08 Jan 2005 20:53:44 GMT
 unknown digestive problem need advice
Its not a eating disorder if it was I"d be better off cause theres some kind
of solution. My dietician is a specialist in eating disorders and verified
that its not. If it was I wouldn't be throwing up fruits and vegies. Going
home is worse and home is the least junk cooking.net">food there is and the reason its
worse is cause it has the most meat. And I did have a esophageal manometry
it showed nothing.

Quote:
> ok, so the tigan stops the vomiting but makes you sleepy (therefore
> non-functional during daytime, right?)
> And I think you've just ruled out  a severe form of GERD, since you say it
> happens less often when lying down. (unless you don't eat within 4 hours
of
> lying down).  But given what you've said, it wouldn't be prudent to do so
> anyway.  The cooking.net">food coming up if/when you were sleeping could {*filter*}you.

> You don't know if you've been checked for achalasia? (right?)
> http://www.***.com/
manometry

> (please read and/or print this out).

> You're talking to a psychologist but don't tell him/her about some things
> (which might be relevant).
> You haven't been screened by a psychiatrist who specializes in childhood
eating
> disorders? and/or a specialist of internal medicine with a degree in
psychiatry
> (to cover both bases)
> You haven't pursued why Compazine affected your heart? (right?) or was it
just
> a fear that it *would* affect your heart?
> You mentioned pains that went away.  What pains?  abdominal?
> It's interesting that Compazine is also used to treat (some forms of)
> porphyria.
> http://www.***.com/
> but it sure is a heavy-duty med and if you did have the pain-related types
of
> porphyria, the way to avoid "pain attacks" is stay out of the sun, avoid
> stress, estrogens, eat frequent small high-carb meals, avoid "unsafe"
> medications.  There's also medications specific for porphyria too.

> Part of me says this might all be psychiatric, the other part says well,
> perhaps the doctors you've seen just aren't considering some of the rarer
> conditions.  I know (or you say) you're tired of seeing doctors.
Frustrating I
> know, if they keep not being able to come up with answers (and better yet)
good
> solutions.

> Have you posted a comprehensive summary to alt.support.schizophrenia ?
(just to
> see if anyone else there has same problem as you describe?).  On the other
> hand, some people with "schizo" also might be mis-diagnosed and/or have
> physical and mental problems (yet undiagnosed) and/or side-effects of
> heavy-duty medications.  So it might just confuse things even more.
> Also and perhaps more relevant alt.support.eating-disord
> I see some posts over there with similar (vomiit then re-swallow)

http://www.***.com/ %20swallow&safe=images&ie=I...
-1&as_ugroup=alt.support.eating-disord&lr=&as_scoring=d&hl=en

- Show quoted text -

Quote:

> (fifth thread down)
> and ....

> http://www.***.com/
> Eating Disorders Not Otherwise Specified (EDNOS)

> There are variants of disordered eating that do not meet the diagnostic
> criteria for anorexia nervosa or bulimia nervosa.
> These are still eating disorders requiring necessary treatment. A
substantial
> number of individuals with eating disorders
> fit into this category. Individuals with eating disordered behaviors that
> resemble anorexia nervosa or bulimia nervosa
> but whose eating behaviors do not meet one or more essential diagnostic
> criteria may be diagnosed with EDNOS.
> Examples include: individuals who meet criteria for anorexia nervosa but
> continue to menstruate, individuals who
> regularly purge but do not binge eat, and individuals who meet criteria
for
> bulimia nervosa, but binge eat less than
> twice weekly, etc. Being diagnosed as having an "Eating Disorder not
Otherwise
> Specified" does not mean that you are
> in any less danger or that you suffer any less. <snip>

> It would probably be of great help if the psychologist would help you get
> copies of all your tests, labs etc.
> Make a list of what has /hasn't been ruled out.
> Try to find out your relatives' medical conditions.  Can you ask
> parents/grandparents?

> Also I've provided you with many "possibles".  Make a list of those too.
> Then be honest with the psychologist (about everything).  Then ask him/her
to
> help you get referred to the best doctor in your area who might help to
rule
> some more things in or out.

> I know it's hard to accept that (in the end) it might be psychological.
The
> subconscious part of the brain can sure do weird things.  So it's possible
that
> this is your brain's way of coping with your overweight (not a healthy way
of
> doing it though).

> Sure too complicated for newsgroups (or me).
> Wish I could help more but I'm honestly tapped with ideas (other than the
ones
> previously provided), so the best thing you can do, is follow up on some
of the
> ones suggested.
> Good luck.
> J
> PS If you find out what it is and/or a/the medication that helps, how
about
> updating us on this newsgroup?  Thanks.


> > actually it happens less often when I'm lying down than when I'm sitting
or
> > standing. And it never happens when I'm sleeping thats whats makes
taking
> > tigan a problem.


> > > You didn't answer my questions so i'll try a different one.
> > > Does the cooking.net">food come up just when you're lying down and/or sleeping? (or
> > anytime)



Sun, 09 Jan 2005 00:51:47 GMT
 unknown digestive problem need advice
I've given you a huge list of other things to get checked out.
In the meantime, I just got an update from another lady. They've found something
wrong with her heart. (see cardiologist)
In addition, here's more ideas to work on.
http://www.drrichardhall.com/lindane.htm (so presumably this might apply to
ongoing exposures to (some) insecticides.
http://arbl.cvmbs.colostate.edu/hbooks/pathphys/digestion/stomach/vom...
(lots of possibles on this url).
Good luck.
J
Quote:

> Its not a eating disorder if it was I"d be better off cause theres some kind
> of solution. My dietician is a specialist in eating disorders and verified
> that its not. If it was I wouldn't be throwing up fruits and vegies. Going
> home is worse and home is the least junk cooking.net">food there is and the reason its
> worse is cause it has the most meat. And I did have a esophageal manometry
> it showed nothing.



Thu, 13 Jan 2005 19:42:32 GMT
 unknown digestive problem need advice
Thanks but I dought its insecticides. I need a really good GI doctor.
Extremely good. I been to one in UCLA and he was a waste of my time.

Quote:
> I've given you a huge list of other things to get checked out.
> In the meantime, I just got an update from another lady. They've found
something
> wrong with her heart. (see cardiologist)
> In addition, here's more ideas to work on.
> http://www.drrichardhall.com/lindane.htm (so presumably this might apply
to
> ongoing exposures to (some) insecticides.

http://arbl.cvmbs.colostate.edu/hbooks/pathphys/digestion/stomach/vom...
tml
Quote:
> (lots of possibles on this url).
> Good luck.
> J

> > Its not a eating disorder if it was I"d be better off cause theres some
kind
> > of solution. My dietician is a specialist in eating disorders and
verified
> > that its not. If it was I wouldn't be throwing up fruits and vegies.
Going
> > home is worse and home is the least junk cooking.net">food there is and the reason
its
> > worse is cause it has the most meat. And I did have a esophageal
manometry
> > it showed nothing.



Fri, 14 Jan 2005 03:19:56 GMT
 
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