Weird Neurological Symptoms Horror Story 
Author Message
 Weird Neurological Symptoms Horror Story

My sister asked that I post the following letter from her friend,
bemoaning the apparent difficulty in diagnosing the friend's wife's
symptoms. Any help you can offer would be appreciated. Either post

Thanks.

    Six weeks ago, my sixty year-old wife was in top physical and mental
    condition, leading an active social life, traveling, and playing
    tennis 5 days a week.  During one of those games last February, she
    suddenly and for no apparent reason felt faint and had to sit down to
    keep her balance.  A few weeks later, she began to experience frequent
    dizzy spells and became increasingly unsteady.  She assumed that this
    was symptomatic of vertigo and went to see an ear specialist.  After
    doing several tests in his office, he determined that her problem was
    not inner-ear related.  He prescribed an MRI and told her to see a
    neurologist.

    The MRI showed no sign of any brain disorder, tumor or any other
    abnormality.  The neurologist disagreed with the ear specialist's
    opinion and diagnosed her symptoms as vertigo.  Her family doctor
    agreed and put her on a mild dose of Valium.

    After taking Valium twice a day for several weeks, my wife reported to
    the internist that her condition was not improving and that the dizzy
    spells were now occurring more frequently, coupled with strong
    headaches.  The family doctor said she should be patient and
    prescribed more Valium.

    My wife became increasingly disenchanted with the family doctor's
    attitude and decided to see a different internist.  The new doctor
    immediately took her off Valium and had her admitted to Cedars-Sinai
    Medical Center in Los Angeles for intensive testing.  The tests were
    conducted by the hospital's chief of cardiology, a senior neurologist,
    a pathologist and included {*filter*} tests, thyroid tests, a body CT Scan,
    electrocardiogram, spinal tap, etc.  She was released from the
    hospital 5 days and $10,000 later with out any clinical diagnosis.
    The new internist and neurologist sent my wife for additional tests on
    an out-patient basis at UCLA Medical Center.  The director of the
    center's neurology department ordered by wife to undergo an
    electroystagmography (ENG) test, which confirmed that the problems she
    was experiencing were not the result of any brain disorder.  A special
    {*filter*} sample was sent to a specialist laboratory in Massachusetts to
    determine if any tumors were present anywhere in her system.  The test
    results were negative.

    The UCLA neurologists and my wife's internist have concluded that
    nothing else could be tested or done for her at this time.  They
    speculate that the symptoms may disappear by themselves without
    treatment or {*filter*}, or that there may be a small tumor somewhere in
    her system that hasn't shown up in any of the tests, which is
    producing antibodies that attack the auto-immune system.  If the
    latter is the case, the doctors feel the tumor will eventually show up
    in a future test (she sees the internist every 6 weeks), at which time
    they will be able to treat it.  In the meantime, my wife sits at home
    helpless, frustrated, unable to walk properly, drive a car, entertain,
    or engage in any physical exercise - hoping for a miracle.

    We would be very grateful to hear from anyone "out there" who has had
    similar symptoms or knows of someone who has had them, and who can
    tell us what the disease is and where and how it can be treated.



Mon, 02 Feb 1998 03:00:00 GMT
 Weird Neurological Symptoms Horror Story

Quote:

>    Six weeks ago, my sixty year-old wife was in top physical and mental
>    condition, leading an active social life, traveling, and playing
>    tennis 5 days a week.  During one of those games last February, she
>    suddenly and for no apparent reason felt faint and had to sit down to
>    keep her balance.  A few weeks later, she began to experience frequent
>    dizzy spells and became increasingly unsteady.  She assumed that this
>    was symptomatic of vertigo and went to see an ear specialist.  After
>    doing several tests in his office, he determined that her problem was
>    not inner-ear related.  He prescribed an MRI and told her to see a
>    neurologist.
>    The MRI showed no sign of any brain disorder, tumor or any other
>    abnormality.  The neurologist disagreed with the ear specialist's
>    opinion and diagnosed her symptoms as vertigo.  Her family doctor
>    agreed and put her on a mild dose of Valium.

[paragraphs describing numerous tests deleted]

Quote:
>    The UCLA neurologists and my wife's internist have concluded that
>    nothing else could be tested or done for her at this time.  They
>    speculate that the symptoms may disappear by themselves without
>    treatment or {*filter*}, or that there may be a small tumor somewhere in
>    her system that hasn't shown up in any of the tests, which is
>    producing antibodies that attack the auto-immune system.  If the
>    latter is the case, the doctors feel the tumor will eventually show up
>    in a future test (she sees the internist every 6 weeks), at which time
>    they will be able to treat it.  In the meantime, my wife sits at home
>    helpless, frustrated, unable to walk properly, drive a car, entertain,
>    or engage in any physical exercise - hoping for a miracle.

I offer this only because it may be worth checking into.  You don't
state whether your wife is taking any other medications.  I have a
friend whose wife suffered sever "neurological" symptoms after an auto
accident and it was assumed that the accident was wholly responsible.
After 3 years of tests and cycles of debilitation and relative
normality, one MD decided to do a test of {*filter*} chemistry - the test
showed vastly abnormal sodium or potassium (sorry, I don't remember
which) due to the {*filter*} pressure medication she was taking (along with
a host of other {*filter*}).  She was gradually withdrawn from all of
these, put on a {*filter*} pressure medication that didn't have these side
effects and appears now to be feeling quite well.

When one sees a number of MDs each with his/her own specialty, things
like this sometimes get overlooked...
========================================================================

<Usual Disclaimer>        "The best is the enemy of the good" - Voltaire

Leon Traister

========================================================================

Phone : (408) 737-5449       | 1250 E. Arques Ave.  M/S 338
Fax   : (408) 737-5338       | P.O. Box 3470
                             | Sunnyvale, CA  94088-3470
========================================================================



Fri, 06 Feb 1998 03:00:00 GMT
 
 [ 2 post ] 

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