Cystic Fibrosis Group? 
Author Message
 Cystic Fibrosis Group?

I have Cystic Fibrosis and was wondering if anyone knew of a news group
comprised of patients or even doctors discussing the disease.  Any help on the
subject would be appreciated.  Thanks for your time.

Be well.   Mark

                                                        _______________________
                                                                 Mark A. Levine

                                                              Lehigh University
                                                         Mechanical Engineering



Sat, 09 Nov 1996 04:01:44 GMT
 Cystic Fibrosis Group?


Quote:
>I have Cystic Fibrosis and was wondering if anyone knew of a news group
>comprised of patients or even doctors discussing the disease.  Any help on the
>subject would be appreciated.  Thanks for your time.

>Be well.   Mark

       CYSTIC FIBROSIS


       Archived Monthly, Private

       Name: MUCO-FR
       Description:
                Cystic Fibrosis discussion list - France  
                (Mucoviscidoses).
       Access:  Electronic Mail
       Contact: Owner:
                Michel Jorda


       Bitnet Address:  FRMOP11  

       Name: CYSTIC-L
       Description:
                The CYSTIC-L discussion group will focus on the  
                holistic impact of cystic fibrosis.  While much of  
                the list will be devoted to discussions of new  
                medical advances as well as possible therapeutic  
                and nutritional treatments, the list should also  
                have a less rigorous side to it.
                It will also be a forum for CF patients to vent  
                about frustrating encounters with the medical-
                industrial complex, to discuss ways of countering  
                bias that might exist in job or school-related  
                activities, and just to talk in general about the  
                myriad of factors that make our lives quite  
                different from those with functional chloride  

                know about it, please contact the owner, below, to  
                avoid over-reproduction.  Of course, passing this  
                along to anyone who might be interested is the  
                entire purpose this message is being posted ...
       Access:  Electronic Mail

       Bitnet Address:  YALEVM        Internet Address:  
                                        YALEVM.CIS.YALE.EDU



Sun, 10 Nov 1996 21:48:30 GMT
 
 [ 2 post ] 

 Relevant Pages 

1. Support group for Cystic Fibrosis

2. Internet Cystic Fibrosis Support Group(s)

3. CYSTIC FIBROSIS INFO NEEDED

4. Cystic Fibrosis

5. Cystic fibrosis and epilepsy?

6. Cystic fibrosis & gene therapy

7. Cystic fibrosis

8. Use of DNase in cystic fibrosis therapy

9. Cystic Fibrosis carrier test

10. Pulmonase for Cystic Fibrosis

11. Cystic Fibrosis

12. cystic fibrosis


 
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