Quote:
>I have Cystic Fibrosis and was wondering if anyone knew of a news group
>comprised of patients or even doctors discussing the disease. Any help on the
>subject would be appreciated. Thanks for your time.
>Be well. Mark
CYSTIC FIBROSIS
Archived Monthly, Private
Name: MUCO-FR
Description:
Cystic Fibrosis discussion list - France
(Mucoviscidoses).
Access: Electronic Mail
Contact: Owner:
Michel Jorda
Bitnet Address: FRMOP11
Name: CYSTIC-L
Description:
The CYSTIC-L discussion group will focus on the
holistic impact of cystic fibrosis. While much of
the list will be devoted to discussions of new
medical advances as well as possible therapeutic
and nutritional treatments, the list should also
have a less rigorous side to it.
It will also be a forum for CF patients to vent
about frustrating encounters with the medical-
industrial complex, to discuss ways of countering
bias that might exist in job or school-related
activities, and just to talk in general about the
myriad of factors that make our lives quite
different from those with functional chloride
know about it, please contact the owner, below, to
avoid over-reproduction. Of course, passing this
along to anyone who might be interested is the
entire purpose this message is being posted ...
Access: Electronic Mail
Bitnet Address: YALEVM Internet Address:
YALEVM.CIS.YALE.EDU