Some of the readers here may remember my queries about
the disease called Idiopathic Pulmonary Hemosiderosis (IPH)
(Bleeding in the lungs) that my 2 year old grandson is afflicted with.
About the the only thing I have found out is that the disease is
very rare. My grandson (Eric), has been in and out of the
hospital what seems like half of his 2 years. One problem
that he has is his eating habits. Basically, he does not
want to eat. He will take cooking.net">food in his mouth, but then spit
it out. He has had all the tests for this problem with
negative results. So, the doctors decided to feed him
intraveneously. He had this "thingy"(sorry, I don't know the
medical term for this thing but it is a direct connection to
his heart) installed under his skin on his chest.
This is used for feeding him a special liquid mixture of fats,
carbos, and a couple of other nutrients, as well as for taking
{*filter*} sample(the normal areas for drawing {*filter*} are kinda useless
now). Well, problems evolved from this. He developed an infection
in the area of this "thingy". Now they have removed it. I
should digress and say he had the feeding tube directly into
the stomache first. Many problems happened with that also and they
had to remove it.
It seems like whatever could happen to the little guy will.
I'll say one thing, he has a hell of a fighting spirit in him!
(I guess the steroids they are giving him could do that!!!)
Anyway, the real reason I am posting is that Eric's medical insurance
will run out in November after paying out probably around $1 million
since birth. My daughter and son-in-law cannot find another carrier
to pick up Eric. My wife came up with the idea of a fund raiser.
We thought about contacting our local professional sporting teams
and solicit autographed sporting gear (jerseys, shoes, etc.) for
either an auction or raffle but really don't know how to go
about doing this.
Has anyone ever been involved with a fund raiser before? Especially
the planning stages? What problems could we run into?
I would appreciate any and all information about getting one going.