Celiac/Gluten-intolerance and recovery ? 
Author Message
 Celiac/Gluten-intolerance and recovery ?

I am curious - when a celiac begins a gluten-free diet, what is the
typical order in which symptoms begin to clear, and is there a typical
(average) amount of time required for each of the symptoms to recede ?
I realize there may not be a "typical" case of celiac sprue, but any
input here is appreciated.



Wed, 05 May 1999 03:00:00 GMT
 Celiac/Gluten-intolerance and recovery ?

Quote:

>I am curious - when a celiac begins a gluten-free diet, what is the
>typical order in which symptoms begin to clear, and is there a typical
>(average) amount of time required for each of the symptoms to recede ?
>I realize there may not be a "typical" case of celiac sprue, but any
>input here is appreciated.

I have a celiac disease too and keep diet since july of this year. In
my case the symptoms were so unspecific that i can't say when they
went away. If I make a mistake in the diet i also don't feel that so i
have no feedback. Only my {*filter*}values in iron and urea are better now.
Other people to which i spoke felt it very early so one don't can give
you a clear time-intervall.


Thu, 06 May 1999 03:00:00 GMT
 Celiac/Gluten-intolerance and recovery ?


Quote:
>I am curious - when a celiac begins a gluten-free diet, what is the
>typical order in which symptoms begin to clear, and is there a typical
>(average) amount of time required for each of the symptoms to recede ?
>I realize there may not be a "typical" case of celiac sprue, but any
>input here is appreciated.

A fair question. Different symptoms have different times. And then things
would undergo a gradual improvement.

I've heard of brain fog clearing in a matter of hours. Digestive symptoms
should clear in a few days. I suspect that general aches and pains can take
from months to a year.

Then, some of the known celiac symptoms can take even longer. For example:

Lactose intolerance can appear as a secondary intolerance to gluten
intolerance as the lactase enzyme is produced in the brush border of the
intestine's microvilli. The brush border is compromised in a gluten
consuming celiac. This can take one to two years to recover from, and many
celiacs never lose the lactose problem, as they never achieve the 100% GF
diet. (e.g. Rice Dream has gluten that is not disclosed on the label.)

Dermatitis herpetiformis is a secondary condition that strikes 5% of
celiacs. These patients have an itchy rash due to IgA deposits that collect
under their skin. It can take one to two years on the gluten-free diet for
the deposits to clear away.

Gluten peptides can also accumulate in the kidneys. Dr. Kalle Reichelt,

researching the impact of gluten and/or casein intolerance in autism and
schizophrenia. Here are quotes from a couple of his articles:

Quote:
>Subject: Diet and mental disease (21 Nov 1994)
>                                                     The effect of diet
>takes a long time because the kidneys are very well adapted to preserve
>peptides and proteins. We found that it took 28 weeks of strict diet to
>normalize the urinary excretion of peptides in a double blind study of diet
>followed with urine analysis and rating scales ...
>Subject: Gluten, casein and behaviour (14 Jul 1995)
>                                                       I think the negative
>experiments were run for too short an interval. A dietary casein and gluten
>free diet would need 1/2 to one year to be certain. In autistic children we
>do also find a clearcut effect of diet run over 4 years

These from an 80K article collection at:

   http://www.panix.com/~donwiss/reichelt.html

And -- this is all presuming a *strict* diet. If the diet isn't strict then
there is frequently improvement then regression. This is because the body
initially heals, then becomes more sensitive to very small amounts of
gluten, and becomes symptomatic again.

Don.



Fri, 07 May 1999 03:00:00 GMT
 Celiac/Gluten-intolerance and recovery ?

Quote:

> I am curious - when a celiac begins a gluten-free diet, what is the
> typical order in which symptoms begin to clear, and is there a typical
> (average) amount of time required for each of the symptoms to recede ?
> I realize there may not be a "typical" case of celiac sprue, but any
> input here is appreciated.

Hi Ron,

I don't think there is a typical case, in part, because hidden sources of
gluten permeate the diet in industrialized nations. Even processed meat
often contains gluten.

I felt "something" different within hours, but I have spoken to others
who took weeks to feel any improvement. Still others only follow the diet
because of the risk of lymphoma. They don't seem to notice any
difference.

Because it has had such a dramatic effect on my life, and because my
brother is dying a horrible death from lymphoma, I can't imagine ever
knowingly ingesting gluten. And because it took over a year to convince
the doctors to test my brother for celiac disease, I feel strongly that
if there is any cause to suspect cd, a simple test makes a lot more sense
than all the potential suffering.

I hope that is helpful.

Sincerely,
Ron Hoggan



Fri, 07 May 1999 03:00:00 GMT
 
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